Quality-of-life assessment in children with fecal incontinence

Diseases of the Colon and Rectum
Humberto S FilhoWilmar A Klug

Abstract

Fecal incontinence is a clinical condition that causes embarrassment and changes the perception of quality of life. The absence of a specific tool for assessing fecal incontinence in children led us to adapt an instrument originally developed for adults, which has already been validated into Portuguese. The purpose of this work was to evaluate the quality of life of children with fecal incontinence. This is a single-center, prospective study based on the application of survey. The Fecal Incontinence Quality of Life questionnaire was modified by eliminating 2 questions related to sexuality and by substituting the word "depressed" with "sad" in the statement, "I feel depressed." The study took place at a tertiary academic medical center. Forty-one children >5 years of age, with incontinence of organic etiology and preserved cognition but without stomy, were interviewed with the use of the Fecal Incontinence Quality of Life modified questionnaire. To evaluate the discrimination validity, 28 healthy children were interviewed as control subjects. As to reproducibility, a test/retest was performed, involving 25 children. For construct validation, the Fecal Incontinence Quality of Life modified was correlated with the generic instrume...Continue Reading

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Citations

Feb 15, 2016·Pediatric Surgery International·João H F ColaresAlberto Peña
Jul 1, 2016·Pediatric Surgery International·Andrea BischoffA Peña
Sep 29, 2018·European Journal of Pediatrics·Marjolijn E W TimmermanPaul M A Broens
Jan 29, 2021·Pediatric Gastroenterology, Hepatology & Nutrition·Marjolijn E W TimmermanPaul M A Broens

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