Quality-of-life factors in adolescent inflammatory bowel disease

Inflammatory Bowel Diseases
M MacPheeA Feranchak

Abstract

Little is known about the specific psychosocial factors that influence quality of life in adolescents with newly diagnosed inflammatory bowel disease (IBD). We adapted a model by Garrett and Drossman to assess adolescent adjustment to recent-onset IBD. Thirty adolescent-parent pairs completed a set of standardized questionnaires. The inclusion criteria were adolescents 12-18 years of age with Crohn's disease or ulcerative colitis of < 5 years' duration. Adolescents' health-related quality-of-life scores significantly correlated with satisfaction and degree of closeness with their social support members, such as parents. An unexpected finding was that the adolescents included more extended family than peers in their social support networks. Also of note was that parental coping styles rather than adolescent coping styles significantly correlated with adolescents' quality-of-life health scores. Severity of illness did not correlate with adolescent quality-of-life health scores. There was significant agreement between adolescent and parental quality-of-life health scores and stressful event ratings. Adolescents with recent-onset IBD rely more on family members than their peers for emotional support, and they depend more on their p...Continue Reading

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Citations

May 22, 2002·The Journal of Nursing Administration·Maura MacPhee, Jill Scott
Oct 12, 2004·Inflammatory Bowel Diseases·Ingrid van der EijkUNKNOWN EC-IBD Study Group
Jun 3, 2005·The American Journal of Gastroenterology·Laura M Mackner, Wallace V Crandall
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Feb 24, 2006·Circulation·Brian W McCrindleUNKNOWN Pediatric Heart Network Investigators
Apr 27, 2007·Journal of Pediatric Gastroenterology and Nutrition·Santanu Maity, Adrian G Thomas
Jul 4, 2009·Inflammatory Bowel Diseases·Teija VäistöKaija-Leena Kolho
Sep 24, 2015·Scandinavian Journal of Caring Sciences·Caisa LindströmAnnika Lindahl Norberg
Feb 11, 2015·Health & Social Care in the Community·Christopher AlexakisAndrew Poullis
Sep 28, 2017·Journal of Pediatric Gastroenterology and Nutrition·Kay DiederenAngelika Kindermann
Aug 19, 2006·Inflammatory Bowel Diseases·Anthony R OtleyUNKNOWN Pediatric IBD Collaborative Research Group
Jan 28, 2005·Inflammatory Bowel Diseases·Seong Won HanMark Richard Welfare
Jun 26, 2008·Journal of Pediatric Psychology·Rachel Neff Greenley, Carin Cunningham
Jun 22, 2012·Journal of Crohn's & Colitis·Andrew M McCombieRichard B Gearry
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Apr 28, 2000·The Journal of Nursing Administration·M MacPhee
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Jan 8, 2015·Journal of Pediatric Gastroenterology and Nutrition·Wendy N GrayKevin A Hommel
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Jan 29, 2021·Pediatric Gastroenterology, Hepatology & Nutrition·Steffen ReinschPhilip Christian Grunert
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Aug 9, 2011·Journal of Pediatric Gastroenterology and Nutrition·Sarah C RossSarah L Wilson
Jul 20, 2021·Journal of Psychosomatic Research·Jacob TempchinLaura C Reigada

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