Quality of life in adolescent and young adult cancer patients: a systematic review of the literature

Patient Related Outcome Measures
Gwendolyn P QuinnDamon Reed

Abstract

Adolescent and young adult (AYA) cancer survivors experience many unique challenges and quality of life (QoL) effects that persist beyond cancer diagnosis and treatment. Due to continuous improvements in technology and cancer treatments resulting in improved survival rates, the identification of late effects, survivorship issues, and QoL is moving to the forefront of cancer research. The goal of this systematic review was to identify key psychosocial factors impacting QoL in AYA oncology populations. A systematic review of the literature was conducted using combinations of these phrases or keywords: "adolescent and young adult or AYA" AND "health outcomes OR quality of life OR psychology" AND "neoplasm OR cancer OR oncology". A total of 35 articles were included in this review. Studies were classified into two categories: AYA perceptions and stakeholder perceptions. AYA cancer survivors were more likely to have "worse" or impaired QoL compared with the general population, regardless of other demographic factors. AYAs described both positive and negatives experiences with their medical care, the educational information received, and the supportive care services. Although health care professionals were likely to underestimate or ...Continue Reading

Citations

May 11, 2016·Thyroid : Official Journal of the American Thyroid Association·Melanie Goldfarb, Jacqueline Casillas
Jun 18, 2016·Journal of Adolescent and Young Adult Oncology·Lucy J W JonesDan P Stark
Sep 23, 2016·Journal of Adolescent and Young Adult Oncology·Olga Husson, Bradley J Zebrack
Oct 28, 2016·Supportive Care in Cancer : Official Journal of the Multinational Association of Supportive Care in Cancer·Alexis R MunozJohn M Salsman
Jul 28, 2016·Journal of Adolescent and Young Adult Oncology·Helen BibbyAntoinette Anazodo
Nov 7, 2017·Journal of Adolescent and Young Adult Oncology·Kolina KoltaiBrenda L Berkelaar
Apr 4, 2018·Clinical & Translational Oncology : Official Publication of the Federation of Spanish Oncology Societies and of the National Cancer Institute of Mexico·P Jimenez-FonsecaC Jara
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Jul 11, 2018·Journal of Clinical Nursing·Anne SideniusHelle Ploug Hansen
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Sep 6, 2018·Qualitative Health Research·Danielle TindlePatsy Yates
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Feb 5, 2019·Current Oncology Reports·Joanne ReidPeter Martin
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Mar 1, 2019·Pediatric Blood & Cancer·Miranda M FidlerPaul C Nathan
Mar 7, 2018·BMC Cancer·Jane M UssherUNKNOWN Australian Cancer and Fertility Study Team (ACFST)
May 24, 2019·Journal of Adolescent and Young Adult Oncology·Bethann M PflugeisenRebecca H Johnson
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Dec 19, 2015·Cancer Control : Journal of the Moffitt Cancer Center·Kristine A DonovanGwendolyn P Quinn

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