Quality of life in children with epilepsy: a review

Archives de pédiatrie : organe officiel de la Sociéte française de pédiatrie
C SoriaG Dellatolas

Abstract

Health-related quality of life (HRQOL) is a multidimensional construct, without general agreement on the number of domains and the content of each domain. In children with epilepsy, the HRQOL evaluation includes both nonspecific aspects, such as behavioral, psychological and cognitive difficulties and the impact of a chronic pediatric illness on the child and its family and specific aspects, such as the perception of the severity of the seizures and of the undesirable effects of the antiepileptic treatments, as well as the social impact of a negative attitude toward epilepsy. The present article presents a review of the methods proposed for the assessment of HRQOL in children with epilepsy. Most methods rely on parental reports; however, there is an increasing effort to develop tools taking the child's point of view into account. HRQOL tools have often been used in clinical trials and, especially, to evaluate the surgical treatments of epilepsy. For the clinician, HRQOL tools may be a preliminary approach to the patient's problems to be interpreted in relation to the patient's medical, psychological, cognitive, social and familial context. In France, few large-scale studies on HRQOL in children with epilepsy have been conducted...Continue Reading

References

Jun 1, 1978·Journal of Abnormal Child Psychology·C H GoyetteR F Ulrich
May 1, 1994·Epilepsia·J K AustinA M McNelis
Jul 1, 1997·Journal of Child Psychology and Psychiatry, and Allied Disciplines·R Goodman
Feb 24, 2001·Archives of Disease in Childhood·C Eiser, R Morse
Jun 7, 2003·Epilepsy & Behavior : E&B·Malachy Bishop, Chase A Allen
Jan 27, 2004·Seizure : the Journal of the British Epilepsy Association·M J McEwanMargaret T Wilson
Oct 27, 2004·Quality of Life Research : an International Journal of Quality of Life Aspects of Treatment, Care and Rehabilitation·Justin Cowan, Gus A Baker
Mar 11, 2005·Indian Journal of Pediatrics·Prahbhjot Malhi, Pratibha Singhi
Jul 27, 2005·Quality of Life Research : an International Journal of Quality of Life Aspects of Treatment, Care and Rehabilitation·Corinna PetersenUNKNOWN DISABKIDS Group
Sep 7, 2005·Epilepsy & Behavior : E&B·Abiodun O Adewuya, Saheed B A Oseni
Jan 31, 2006·Acta Neurologica Scandinavica·L YongQ Jiong
Sep 9, 2006·Epilepsy & Behavior : E&B·Dalin T PulsipherBruce Hermann
Sep 15, 2006·Epilepsy & Behavior : E&B·Sandra El SabbaghGeorges Dellatolas
Sep 26, 2006·Pediatric Neurology·Anne M ConnollyAnn M E Bye
Oct 3, 2006·Epilepsy & Behavior : E&B·Winnie K L YamUNKNOWN Working Group for Multi-Centre Study on Quality of Life Measures for Youth with Epilepsy
Apr 10, 2007·Epilepsy & Behavior : E&B·Dejan Stevanovic
Jun 15, 2007·Developmental Neurorehabilitation·Carmen SoriaGeorges Dellatolas

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Citations

Jun 24, 2015·Soins. Pédiatrie, puériculture·Marine Labidurie, Julie Leduc-Leballeur
Feb 14, 2015·Epilepsy & Behavior : E&B·Euloge IbingaMichel Druet-Cabanac
Oct 23, 2013·Epilepsia·Carlo Efisio MarrasUNKNOWN Commission on Epilepsy Surgery of the Italian League Against Epilepsy

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