PMID: 15388064Sep 25, 2004Paper

Quality of life, time commitment and burden perceived by the principal informal caregiver of Alzheimer's patients

Atencion primaria
X Badia LlachM Roset Gamisans

Abstract

To evaluate the impact in Health Related Quality of Life (HRQoL), the time commitment and the burden perceived by the principal informal caregiver (PIC) of Alzheimer's patients (AP) in Spain, as well as the type and amount of external help received. Multicentric descriptive cross-sectional study. A randomised sample of 268 PIC were included from 19 Alzheimer's Patient Family Associations (APFA) randomly selected from all Spanish regions. Data were collected using a structured telephone interview with the CATI system. HRQoL was measured using the questionnaire EuroQoL-5D. Information was also collected on the health problems of the PIC, the burden perceived (using the specific Zarit scale), the time commitment of PICs (hours per day), type of activity, as well as the amount and type of external help received. The HRQoL of the PIC showed to be worse than the general population in the EQ-5D, except in the self-care dimension. A total of 84% of PIC had physical problems related to the care given to the AP and 94.4% had psychological problems. The Zarit scale showed that 46.5% of caregivers had a level of burden between severe and moderated, while in 34.7% was severe. Time commitment was more than 8 hours per day in 72.1% of them an...Continue Reading

Citations

Mar 29, 2014·BMC Family Practice·Magdalena Rosell-MurphyUNKNOWN ICIAS research group
Aug 7, 2017·Quality of Life Research : an International Journal of Quality of Life Aspects of Treatment, Care and Rehabilitation·María Del Río LozanoIsabel Larrañaga-Padilla
Feb 13, 2020·International Journal of Environmental Research and Public Health·Miguel MadrugaNarcis Gusi
Mar 29, 2020·International Journal of Environmental Research and Public Health·Marta Ramos-CamposPatricia Mesa-Gresa
Sep 10, 2005·Social Psychiatry and Psychiatric Epidemiology·Abdel W AwadallaAdel M Tawfiq
Mar 7, 2012·Arquivos de neuro-psiquiatria·Einstein Francisco CamargosPatricia Medeiros-Souza
Feb 13, 2016·Journal of Public Health Policy·Luís González-de PazMaría Dolores Navarro-Rubio
Aug 3, 2016·Neurodegenerative Disease Management·José Meca-LallanaMaría Del Campo Amigo-Jorrín
Mar 11, 2015·Scandinavian Journal of Caring Sciences·María Pilar Sánchez-LópezIsabel Cuéllar-Flores
Dec 3, 2016·European Journal of Clinical Nutrition·R Villar-TaiboJ Rojo-Valdés
Sep 10, 2010·American Journal of Alzheimer's Disease and Other Dementias·Juan Carlos Arango-LasprillaMariantonia Lemos
Jul 1, 2013·Dementia & Neuropsychologia·Jefferson Cunha FolquittoCássio Machado de Campos Bottino
Mar 16, 2021·Aging & Mental Health·F Javier García-CastroMaría J Blanca

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