Quality of Life with Late-Stage Dementia: Exploring Opportunities to Intervene

Journal of the American Geriatrics Society
Natalie C ErnecoffLaura Hanson

Abstract

In late-stage dementia, families often prioritize quality of life (QoL) and comfort, yet little research examines factors impacting QoL. We sought to (1) describe temporal trends in QoL in late-stage dementia, and (2) explore associations between patient characteristics, care interventions, and QoL. Secondary analysis of data from the Goals of Care clinical trial. Twenty-two nursing homes (NHs) in North Carolina. Family decision makers for residents with late-stage dementia. Family-reported QoL at baseline and at 9 months using the Alzheimer's Disease-Related Quality of Life Instrument (ADRQL) with five subscales scored 0 to 100 (higher scores indicate better quality). Families reported demographics, primary goal of care, and described their perceptions of residents' QoL. Chart reviews provided data on hospital transfers, treatment plans, and hospice enrollment. We ran mixed effects models of hypothesized variables and change in ADRQL over time. The study sample was 241 dyads of residents with late-stage dementia and family decision makers. Family-reported ADRQL scores reflected moderately good QoL at baseline and at 9 months (69.1 vs 66.9; p = .106). Subscales for Awareness of Self (62.8; Global Deterioration Scale [GDS] = 5; ...Continue Reading

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Citations

Jun 18, 2021·Palliative Medicine·Bria BrowneNathan Davies
Sep 15, 2021·The American Journal of Hospice & Palliative Care·Phyllis B WhiteheadKye Y Kim
Sep 29, 2021·The Cochrane Database of Systematic Reviews·Sharon C WalshEamon O'Shea

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