Quest for certainty regarding early discharge in paediatric low-risk febrile neutropenia: a multicentre qualitative focus group discussion study involving patients, parents and healthcare professionals in the UK

BMJ Open
Jessica E MorganKarl Atkin

Abstract

A systematic review of paediatric low-risk febrile neutropenia found that outpatient care is safe, with low rates of treatment failure. However, this review, and a subsequent meta-ethnography, suggested that early discharge of these patients may not be acceptable to key stakeholders. This study aimed to explore experiences and perceptions of patients, parents and healthcare professionals involved in paediatric febrile neutropenia care in the UK. Three different centres within the UK, purposively selected from a national survey on the basis of differences in their service structure and febrile neutropenia management. Thirty-two participants were included in eight focus group discussions. Experiences and perceptions of paediatric febrile neutropenia care, including possible future reductions in therapy. Participants described a quest for certainty, in which they attempted to balance the uncertainty involved in understanding, expressing and negotiating risk with the illusion of certainty provided by strict protocols. Participants assessed risk using both formal and informal stratification tools, overlaid with emotional reactions to risk and experiences of risk within other situations. The benefits of certainty provided by protocol...Continue Reading

Citations

Mar 25, 2019·Archives of Disease in Childhood·Hugh T DaviesSimon R Stones
Mar 19, 2020·Archives of Disease in Childhood·Nicola SeneviratneRobert Phillips
Nov 22, 2020·Pediatric Blood & Cancer·Anne-Sophie E DarlingtonBob Phillips
Feb 4, 2021·Journal of Paediatrics and Child Health·Gabrielle M HaeuslerLisa Hall
Mar 21, 2021·Pediatric Nephrology : Journal of the International Pediatric Nephrology Association·Yincent TseArvind Nagra
Apr 10, 2021·Infection and Drug Resistance·Jessica E MorganJulia C Chisholm
Jun 18, 2021·Pediatric Pulmonology·Nicole CollaçoAnne-Sophie Darlington
Jul 20, 2021·World Journal for Pediatric & Congenital Heart Surgery·L V MarinoAnne-Sophie E Darlington

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