Racial differences in patient consent policy preferences for electronic health information exchange.

Journal of the American Medical Informatics Association : JAMIA
Carolyn L TurveyMargaret Donahue

Abstract

This study aimed to explore the association between demographic variables, such as race and gender, and patient consent policy preferences for health information exchange as well as self-report by VHA enrollees of information continuity between Veterans Health Administration (VHA) and community non-VHA heath care providers. Data were collected between March 25, 2016 and August 22, 2016 in an online survey of 19 567 veterans. Three questions from the 2016 Commonwealth Fund International Health Policy Survey, which addressed care continuity, were included. The survey also included questions about consent policy preference regarding opt-out, opt-in, and "break the glass" consent policies. VHA enrollees had comparable proportions of unnecessary laboratory testing and conflicting information from providers when compared with the United States sample in the Commonwealth Survey. However, they endorsed medical record information being unavailable between organizations more highly. Demographic variables were associated with gaps in care continuity as well as consent policy preferences, with 56.8% of Whites preferring an opt-out policy as compared with 40.3% of Blacks, 44.9% of Hispanic Latinos, 48.3% of Asian/Pacific Islanders, and 38.3...Continue Reading

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Citations

Apr 2, 2020·Journal of the American Medical Informatics Association : JAMIA·Leslie Lenert, Brooke Yeager McSwain
Jan 17, 2021·International Journal of Medical Informatics·Iris ReychavJoseph Azuri
Jul 15, 2021·Current Oncology Reports·Jennifer M KwanSherry-Ann Brown
Sep 4, 2021·Yearbook of Medical Informatics·Meryl BloomrosenUNKNOWN Section Editors for the IMIA Yearbook Section on Health Information Management

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