Rare Cancers and Social Media: Analysis of Twitter Metrics in the First 2 Years of a Rare-Disease Community for Myeloproliferative Neoplasms on Social Media-#MPNSM.

Current Hematologic Malignancy Reports
Naveen PemmarajuMichael A Thompson

Abstract

The use of social media has now become a standard means of communication for many individuals worldwide. The use of one specific form of social media, Twitter, has increased among healthcare providers, both as a means of information gathering and as a conduit for original content creation. Recently, major efforts by users have been put forward to help streamline the unprecedented amount of information that can be found on Twitter. These efforts have led to the creation of diseasespecific hashtag (#) medical communities and have greatly enhanced the ability to understand and better categorize the available data on Twitter. Specifically, for those involved in rare cancer fields, adhering to organically designed and consistently used hashtags has led to the rapid, reliable dissemination of information and the ability to efficiently discuss and debate topics of interest in the field. For the field of myeloproliferative neoplasms (MPNs), the creation of #MPNSM (myeloproliferative neoplasms on social media) in 2015 has facilitated interactions among healthcare stakeholders from all over the world in the MPN field. In order to better understand the trends and topics of interest to Twitter users of this novel medical community, we cond...Continue Reading

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Citations

Jul 9, 2020·Genomics & Informatics·Atsuko Yamaguchi, Núria Queralt-Rosinach
Apr 25, 2019·Systematic Reviews·Catherine BellHelen McAneney
Sep 10, 2019·Hepatology Communications·Ben L DaChristopher Koh
Jul 30, 2020·Journal of Medical Internet Research·Abdulrahman AlghamdiAhmed Al-Shehri
Oct 17, 2018·Current Hematologic Malignancy Reports·Sagar S Patel, Navneet S Majhail
Nov 22, 2020·Modern Pathology : an Official Journal of the United States and Canadian Academy of Pathology, Inc·Siba El HusseinSanam Loghavi
Nov 13, 2020·Current Hematologic Malignancy Reports·Jessica S Little, Rizwan Romee
Apr 1, 2021·Current Hematologic Malignancy Reports·Rahul BanerjeeNaveen Pemmaraju
Jul 21, 2021·Genetics in Medicine : Official Journal of the American College of Medical Genetics·Emily G MillerMeghan C Halley
Feb 4, 2022·Journal of Cancer Survivorship : Research and Practice·Deanna J AttaiLarissa Nekhlyudov

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