Recruitment and Reasons for Non-Participation in a Family-Coping-Orientated Palliative Home Care Trial (FamCope)

Journal of Psychosocial Oncology
Anne Birgitte Hjuler AmmariSusan Rydahl-Hansen

Abstract

Cancer patients and their family caregivers need support to cope with physical, psychosocial, and existential problems early in the palliative care trajectory. Many interventions target patient symptomatology, with health care professionals acting as problem-solvers. Family coping, however, is a new research area within palliative care. The FamCope intervention was developed to test if a nurse-led family-coping-orientated palliative home care intervention would help families cope with physical and psychosocial problems at home-together as a family and in interaction with health care professionals. However, an unexpectedly high number of families declined participation in the trial. We describe and discuss the recruitment strategy and patient reported reasons for non-participation to add to the knowledge about what impedes recruitment and to identify the factors that influence willingness to participate in research aimed at family coping early in the palliative care trajectory. Patients with advanced cancer and their closest relative were recruited from medical, surgical, and oncological departments. Reasons for non-participation were registered and characteristics of participants and non-participants were compared to evaluate d...Continue Reading

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Citations

Nov 9, 2015·Pancreatology : Official Journal of the International Association of Pancreatology (IAP) ... [et Al.]·Richard C Turner
May 17, 2017·Biological Research for Nursing·Stephanie Gilbertson-WhiteKaren E Wickersham
Jul 12, 2018·Journal of Psychosocial Oncology·Anne Birgitte Hjuler AmmariSusan Rydahl-Hansen
Nov 1, 2017·Nursing Open·Austyn Snowden, Jenny Young
Apr 8, 2020·Journal of Palliative Medicine·Lauren J BreenSamar M Aoun

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Software Mentioned

SPSS
SAS
FamCope

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