Recruitment of a community-based cohort for research on diversity and risk of dementia.

Alzheimer Disease and Associated Disorders
Ladson HintonDan Mungas

Abstract

We describe the history, development, and success of the recruitment and screening procedures used by researchers at the University of California, Davis Alzheimer's Disease Center (UCD ADC) to facilitate minority enrollment in research. After an initial, unsuccessful approach with satellite clinics in minority neighborhoods, the ADC shifted to an active community outreach approach. Multiple strategies were implemented to remove barriers to research participation such as providing transportation to clinical appointments and offering in-home cognitive screening. Considerable resources were directed toward hiring and training bicultural and bilingual individuals with knowledge of the target populations, both as recruiters and staff involved in clinical assessment. Implementation of these methods resulted in a dramatic increase in the number of ethnic minorities enrolled (and retained) in research protocols, including protocols that are complex and longitudinal. Diversity was achieved on other variables as well; years of education in the cohort range from 0 to 21, with 26% having 8 years or less. The community screen identified candidates for an in depth clinical evaluation and enrollment in longitudinal research, and we examined f...Continue Reading

References

Jan 13, 1989·JAMA : the Journal of the American Medical Association·C K Svensson
Dec 6, 1995·Journal of the National Cancer Institute·G M Swanson, A J Ward
Oct 1, 1996·Journal of Consulting and Clinical Psychology·J MirandaA Lieberman
Oct 1, 1996·Journal of Consulting and Clinical Psychology·P A Areán, D Gallagher-Thompson
Apr 7, 1999·Alzheimer Disease and Associated Disorders·L P SandsL Schneider
Jun 16, 1999·Alzheimer Disease and Associated Disorders·M A Gauthier, W P Clarke
Jun 16, 1999·Alzheimer Disease and Associated Disorders·A J Wrobel, N E Shapiro
Jan 1, 1994·Alzheimer Disease and Associated Disorders·Kathleen A WelshLindy Harrell
Sep 28, 2002·Alzheimer Disease and Associated Disorders·Jason T OlinLon S Schneider
Feb 1, 2003·Journal of the American Geriatrics Society·Mary N HaanWilliam J Jagust
Feb 27, 2003·The Gerontologist·Patricia A AreánKaren Linkins
Sep 28, 2004·Journal of Aging and Health·Gina Moreno-JohnEliseo J Pérez-Stable
Oct 11, 2005·Journal of the International Neuropsychological Society : JINS·Dan MungasCharles DeCarli
Mar 15, 2006·Annual Review of Public Health·Antronette K YanceyShiriki K Kumanyika
Mar 22, 2007·Journal of General Internal Medicine·Stacy J UyBicoCary P Gross

❮ Previous
Next ❯

Citations

Aug 4, 2010·Psychology and Aging·Dan MungasCharles DeCarli
Mar 9, 2011·Neuropsychology·Dan MungasSarah Tomaszewski Farias
Aug 26, 2014·Neuropsychology Review·Samuel N Lockhart, Charles DeCarli
Feb 11, 2015·Neurobiology of Aging·Pauline MaillardCharles DeCarli
Jan 7, 2014·The Journals of Gerontology. Series B, Psychological Sciences and Social Sciences·Rebecca J MelroseDan Mungas
Apr 30, 2016·Journal of Alzheimer's Disease : JAD·Judith NeugroschlMary Sano
Sep 4, 2016·Alzheimer's & Dementia : the Journal of the Alzheimer's Association·Yingjia ChenLaurel Beckett
May 20, 2014·International Journal of Geriatric Psychiatry·Heather GageBartley Sheehan
Feb 18, 2019·Alzheimer's & Dementia : the Journal of the Alzheimer's Association·Jessica B LangbaumPierre N Tariot
Jan 25, 2020·Journal of the International Neuropsychological Society : JINS·Teresa FilshteinSarah Farias
Nov 2, 2019·Journal of the International Neuropsychological Society : JINS·Sarah Tomaszewski FariasTania Giovannetti
Jun 17, 2020·Alzheimer's & Dementia : the Journal of the Alzheimer's Association·Shelytia CocroftJames R Burke
Dec 11, 2013·Alzheimer Disease and Associated Disorders·Joshua D Grill, James E Galvin
Mar 13, 2014·Alzheimer Disease and Associated Disorders·Heather R RomeroAllen D Roses
Dec 17, 2019·Hispanic Health Care International : the Official Journal of the National Association of Hispanic Nurses·Jaime Perales-PuchaltEric D Vidoni
Feb 11, 2020·Journal of Alzheimer's Disease : JAD·Kaitlin B CasalettoLaura B Zahodne
Apr 17, 2020·International Psychogeriatrics·Gary J Kennedy, Mirnova E Ceïde
May 7, 2014·Journal of Applied Gerontology : the Official Journal of the Southern Gerontological Society·Karen MorrisonLaura N Gitlin
Oct 10, 2020·Alzheimer's & Dementia : the Journal of the Alzheimer's Association·Andrea DennyJennifer H Lingler
Jan 19, 2021·Journal of the International Neuropsychological Society : JINS·Dan MungasSarah Tomaszewski Farias
Jul 3, 2021·International Journal of Environmental Research and Public Health·Lilah M BesserJohn Renne
Jun 22, 2021·NeuroImage. Clinical·Sarah F AckleyM Maria Glymour
Jul 25, 2021·Social Science & Medicine·Oanh L MeyerRachel A Whitmer
Apr 27, 2021·Alzheimer Disease and Associated Disorders·Sarah T FariasDan Mungas

❮ Previous
Next ❯

Related Concepts

Trending Feeds

COVID-19

Coronaviruses encompass a large family of viruses that cause the common cold as well as more serious diseases, such as the ongoing outbreak of coronavirus disease 2019 (COVID-19; formally known as 2019-nCoV). Coronaviruses can spread from animals to humans; symptoms include fever, cough, shortness of breath, and breathing difficulties; in more severe cases, infection can lead to death. This feed covers recent research on COVID-19.

Blastomycosis

Blastomycosis fungal infections spread through inhaling Blastomyces dermatitidis spores. Discover the latest research on blastomycosis fungal infections here.

Nuclear Pore Complex in ALS/FTD

Alterations in nucleocytoplasmic transport, controlled by the nuclear pore complex, may be involved in the pathomechanism underlying multiple neurodegenerative diseases including Amyotrophic Lateral Sclerosis and Frontotemporal Dementia. Here is the latest research on the nuclear pore complex in ALS and FTD.

Applications of Molecular Barcoding

The concept of molecular barcoding is that each original DNA or RNA molecule is attached to a unique sequence barcode. Sequence reads having different barcodes represent different original molecules, while sequence reads having the same barcode are results of PCR duplication from one original molecule. Discover the latest research on molecular barcoding here.

Chronic Fatigue Syndrome

Chronic fatigue syndrome is a disease characterized by unexplained disabling fatigue; the pathology of which is incompletely understood. Discover the latest research on chronic fatigue syndrome here.

Evolution of Pluripotency

Pluripotency refers to the ability of a cell to develop into three primary germ cell layers of the embryo. This feed focuses on the mechanisms that underlie the evolution of pluripotency. Here is the latest research.

Position Effect Variegation

Position Effect Variagation occurs when a gene is inactivated due to its positioning near heterochromatic regions within a chromosome. Discover the latest research on Position Effect Variagation here.

STING Receptor Agonists

Stimulator of IFN genes (STING) are a group of transmembrane proteins that are involved in the induction of type I interferon that is important in the innate immune response. The stimulation of STING has been an active area of research in the treatment of cancer and infectious diseases. Here is the latest research on STING receptor agonists.

Microbicide

Microbicides are products that can be applied to vaginal or rectal mucosal surfaces with the goal of preventing, or at least significantly reducing, the transmission of sexually transmitted infections. Here is the latest research on microbicides.