Reflections, impact and recommendations of a co-produced qualitative study with young people who have experience of mental health difficulties.

Health Expectations : an International Journal of Public Participation in Health Care and Health Policy
Lindsay H DewaPaul Aylin

Abstract

There is limited evidence of genuine equal partnership where power is shared with young people with mental health difficulties throughout all research stages, particularly in data collection and analysis. To describe how our qualitative study, exploring young peoples' perceptions on the feasibility of using technology to detect mental health deterioration, was co-produced using principles of co-production, whilst reflecting on impact, challenges and recommendations. Young people with experience of mental health difficulties were appointed and then worked with researchers throughout all research stages. The study was evaluated against the five principles of co-production. Reflections from researchers and young people were collected throughout. Seven young people formed an initial Young People's Advisory Group (YPAG); three became co-researchers. Reflection was key throughout the process. Sharing power became easier and more evident as trust, confidence and mutual respect grew over time, particularly after a safe space was established. The safe space was crucial for open discussions, and our WhatsApp group enabled continual communication, support and shared decision-making. The resulting co-produced topic guide, coding framework,...Continue Reading

References

Jul 20, 2012·Health Expectations : an International Journal of Public Participation in Health Care and Health Policy·Jo BrettRashida Suleman
Jun 12, 2014·BMJ : British Medical Journal·Tessa Richards, Fiona Godlee
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Sep 1, 2018·Health Expectations : an International Journal of Public Participation in Health Care and Health Policy·Dr Gary Hickey
Mar 30, 2019·Health Research Policy and Systems·Kathryn OliverNicholas Mays
Jul 20, 2019·Scandinavian Journal of Public Health·Kirsti Malterud, Kari Tove Elvbakken
Oct 16, 2019·Health Expectations : an International Journal of Public Participation in Health Care and Health Policy·Nia Coupe, Amy Mathieson
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