Regulatory approaches to reproductive genetic testing

Human Reproduction
Bartha M Knoppers, Rosario M Isasi

Abstract

This report analyses the ethical and legal aspects of reproductive genetic testing in 11 countries (Australia, Austria, Canada, France, Germany, India, Israel, Japan, The Netherlands, Switzerland and the UK). The legal status of reproductive genetic testing in the countries under analysis is difficult to generalize due to the different regulatory systems adopted. These approaches are a reflection of the legal traditions and cultural and socio-religious beliefs which inform and shape public policy on assisted reproductive technologies and genetic testing. We divide approaches into two groups: public ordering (legislative, top-down approach) and private ordering (non-legislative, bottom-up approach). Even limiting our analysis to a number of countries that span the range from restrictive to pragmatic approaches, there is remarkable symmetry in both the (i) substantive requirements (i.e. gravity, health indications generally) and (ii) procedural safeguards (i.e. informed consent, counselling, confidentiality, civil status, oversight and accreditation) surrounding reproductive genetic testing. Indeed, irrespective of whether a country adopts a prohibitive or a permissive approach through legislation or self-regulation or a mix of b...Continue Reading

References

Aug 1, 1994·Politics and the Life Sciences : the Journal of the Association for Politics and the Life Sciences·Bartha Maria Knoppers, Sonia Le Bris
Feb 22, 2002·American Journal of Medical Genetics·Dorothy C Wertz, Bartha Maria Knoppers

❮ Previous
Next ❯

Citations

Mar 1, 2010·Journal of Community Genetics·Aviad E Raz
Jun 22, 2005·The International Journal of Biochemistry & Cell Biology·Erynn S GordonEric P Hoffman
Nov 26, 2009·Reproductive Biomedicine Online·T Krahn, S I Wong
Aug 4, 2011·European Journal of Human Genetics : EJHG·Elizabeth OrmondroydMaggie Watson
Jun 10, 2005·European Journal of Human Genetics : EJHG·Erynn S GordonEric P Hoffman
Apr 26, 2006·European Journal of Human Genetics : EJHG·Sirpa SoiniUNKNOWN ESHRE
May 27, 2006·Annual Review of Genomics and Human Genetics·Bartha M KnoppersRosario M Isasi
Aug 19, 2009·CMAJ : Canadian Medical Association Journal = Journal De L'Association Medicale Canadienne·Chantal BouffardBartha Maria Knoppers
Mar 12, 2008·Yi chuan = Hereditas·Yan-Ping Cheng
Sep 12, 2013·European Journal of Human Genetics : EJHG·Heather SkirtonLyn Chitty
Oct 7, 2011·Reproductive Biomedicine Online·Andrea M Whittaker
Nov 9, 2005·Reproductive Biomedicine Online·Andrea L KalfoglouKathy Hudson
Jul 14, 2007·Fertility and Sterility·Susannah BaruchKathy L Hudson
Jan 21, 2015·The Hastings Center Report·Michelle Bayefsky
Dec 11, 2014·Brazilian Journal of Medical and Biological Research = Revista Brasileira De Pesquisas Médicas E Biológicas·B B DamianD D G Horovitz
Feb 4, 2019·Molecular Genetics & Genomic Medicine·Vanessa Di GioacchinoAlison M Elliott
Nov 4, 2008·Medicine, Health Care, and Philosophy·Timothy Krahn
Jul 22, 2019·Journal of Medical Ethics·Erika KleidermanBartha Maria Knoppers
Sep 12, 2019·Cold Spring Harbor Perspectives in Medicine·Margaret E C Ginoza, Rosario Isasi
Sep 15, 2020·Journal of Pediatric Gastroenterology and Nutrition·Ziqing YeHolm H Uhlig

❮ Previous
Next ❯

Related Concepts

Trending Feeds

COVID-19

Coronaviruses encompass a large family of viruses that cause the common cold as well as more serious diseases, such as the ongoing outbreak of coronavirus disease 2019 (COVID-19; formally known as 2019-nCoV). Coronaviruses can spread from animals to humans; symptoms include fever, cough, shortness of breath, and breathing difficulties; in more severe cases, infection can lead to death. This feed covers recent research on COVID-19.

Blastomycosis

Blastomycosis fungal infections spread through inhaling Blastomyces dermatitidis spores. Discover the latest research on blastomycosis fungal infections here.

Nuclear Pore Complex in ALS/FTD

Alterations in nucleocytoplasmic transport, controlled by the nuclear pore complex, may be involved in the pathomechanism underlying multiple neurodegenerative diseases including Amyotrophic Lateral Sclerosis and Frontotemporal Dementia. Here is the latest research on the nuclear pore complex in ALS and FTD.

Applications of Molecular Barcoding

The concept of molecular barcoding is that each original DNA or RNA molecule is attached to a unique sequence barcode. Sequence reads having different barcodes represent different original molecules, while sequence reads having the same barcode are results of PCR duplication from one original molecule. Discover the latest research on molecular barcoding here.

Chronic Fatigue Syndrome

Chronic fatigue syndrome is a disease characterized by unexplained disabling fatigue; the pathology of which is incompletely understood. Discover the latest research on chronic fatigue syndrome here.

Evolution of Pluripotency

Pluripotency refers to the ability of a cell to develop into three primary germ cell layers of the embryo. This feed focuses on the mechanisms that underlie the evolution of pluripotency. Here is the latest research.

Position Effect Variegation

Position Effect Variagation occurs when a gene is inactivated due to its positioning near heterochromatic regions within a chromosome. Discover the latest research on Position Effect Variagation here.

STING Receptor Agonists

Stimulator of IFN genes (STING) are a group of transmembrane proteins that are involved in the induction of type I interferon that is important in the innate immune response. The stimulation of STING has been an active area of research in the treatment of cancer and infectious diseases. Here is the latest research on STING receptor agonists.

Microbicide

Microbicides are products that can be applied to vaginal or rectal mucosal surfaces with the goal of preventing, or at least significantly reducing, the transmission of sexually transmitted infections. Here is the latest research on microbicides.