Relation Between Religious Perspectives and Views on Sickle Cell Disease Research and Associated Public Health Interventions in Ghana

Journal of Genetic Counseling
Jemima A Dennis-AntwiMarsha J Treadwell

Abstract

Sickle cell disease (SCD) is highly prevalent in Africa with a significant public health burden for under-resourced countries. We employed qualitative research methods to understand the ethical, legal, and social implications of conducting genomic research in SCD under the Human Heredity and Health in Africa (H3Africa) initiative. The present study focused on religious and cultural aspects of SCD with the view to identifying beliefs and attitudes relevant to public health interventions in Ghana. Thematic analyses from individual and group interviews revealed six key areas of importance, namely, reliance on a supreme being; religion as a disruptive influence on health behaviors; role of religious leaders in information sharing and decision-making; social, religious, and customary norms; health and religious/supernatural beliefs; and need for social education and support through church and community. Findings suggest that public health programs in Ghana should not only aim at increasing knowledge and awareness about SCD and its management but also create an understanding of the relevance of genomics and alternative technological advancement to diagnosis and ethical decision-making around available options for health seeking. Futu...Continue Reading

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Citations

Sep 25, 2020·The Journal of Pastoral Care & Counseling : JPCC·Annabella Osei-TutuAbraham Kenin
Mar 7, 2020·NPJ Genomic Medicine·Amy R BentleyCharles N Rotimi
Mar 4, 2021·International Journal of Neonatal Screening·Daima BukiniJulie Makani
Feb 14, 2021·NPJ Genomic Medicine·Amy R BentleyCharles N Rotimi
Mar 21, 2021·Journal of Immigrant and Minority Health·Miriam O EzenwaDiana J Wilkie

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