Reliability of the autoimmune bullous disease quality of life (ABQOL) questionnaire in the USA

Quality of Life Research : an International Journal of Quality of Life Aspects of Treatment, Care and Rehabilitation
Deshan F SebaratnamVictoria P Werth

Abstract

To evaluate the reliability of the autoimmune bullous diseases quality of life (ABQOL) questionnaire in a North American patient cohort. Patients attending the dermatology clinics of the University of Pennsylvania with a histological diagnosis of an autoimmune bullous disease (AIBD) and self-reported proficiency in English were recruited to participate in the study. Patients completed the ABQOL questionnaire at Day 0 and Day 3. Internal consistency was calculated through Cronbach's alpha. Test-retest reliability was determined by the intraclass correlation coefficient. Of the 45 patients enrolled in the study, 39 patients (87 %) participated to completion. The mean age was 60.7 years with an equal sex distribution observed. Patients had a range of AIBD including pemphigus vulgaris, bullous pemphigoid, pemphigus foliaceus, epidermolysis bullosa acquisita, mucous membrane pemphigoid and linear IgA disease. Cronbach's alpha was calculated to be 0.90. The intraclass correlation coefficient was calculated to be 0.93 (95 % confidence interval 0.88-0.94). The ABQOL was found to be reliable tested by internal consistency and test-retest reliability in an American patient cohort. It represents a promising disease-specific outcome measur...Continue Reading

References

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Mar 29, 2014·Quality of Life Research : an International Journal of Quality of Life Aspects of Treatment, Care and Rehabilitation·Susan ClemensPaul A Scuffham

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Citations

Jan 7, 2015·The Journal of Dermatology·Cathy Y Zhao, Dédée F Murrell
Apr 5, 2020·Quality of Life Research : an International Journal of Quality of Life Aspects of Treatment, Care and Rehabilitation·C C G TogoE S Dutra
May 12, 2017·Nature Reviews. Disease Primers·Michael KasperkiewiczMasayuki Amagai
May 10, 2017·Indian Journal of Dermatology, Venereology and Leprology·Guo ChenFuren Zhang
Apr 2, 2019·Annales de dermatologie et de vénéréologie·L JeltiUNKNOWN Groupe Bulles de la SFD et la Filière des maladies rares dermatologiques (FIMARAD)
May 8, 2021·Italian Journal of Dermatology and Venereology·Giacomo VitiDedee F Murrell
Mar 9, 2021·Journal of the American Academy of Dermatology·Carmen M MontagnonStanislav N Tolkachjov
Aug 18, 2020·Journal of the American Academy of Dermatology·Leah L ThompsonAlexandra Charrow

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