Representation and reporting of communicatively vulnerable patients in patient experience research

International Journal of Speech-language Pathology
Robyn O'HalloranChristine Bigby

Abstract

Purpose: To apply a human rights lens to measuring patient experience. Specifically, to determine if the perspectives of communicatively vulnerable people have been included in the patient experience research used to inform the development of the Australian Hospital Patient Experience Question Set (AHPEQS). Method: Thirty-nine qualitative studies on patient experience that informed the development of AHPEQS were critically appraised in terms of reporting on: population of interest, eligibility criteria, communicative demands of the research and communicative supports provided. Result: Eleven of 39 studies included sufficient information about the population to determine that communicatively vulnerable people would have been approached to participate. Three of these studies explicitly excluded people who were communicatively vulnerable, and four did not report on the provision of any communication supports to enable communicatively vulnerable people to participate. Conclusion: Intentional exclusion and/or a lack of communication supports restrict the rights of people who are communicatively vulnerable to express their opinions about what matters to them in hospital. Inadequate reporting of qualitative research on patient experie...Continue Reading

References

Mar 20, 2004·Journal of Advanced Nursing·Allison Williams
Apr 2, 2004·Journal of Advanced Nursing·Elizabeth ManiasLinda Baker
Sep 14, 2004·Journal of Clinical Nursing·Anne M Williams, Vera F Irurita
Sep 15, 2004·Australian Health Review : a Publication of the Australian Hospital Association·Amanda HendersonAnn Daniel
Dec 22, 2004·Journal of General Internal Medicine·Darren A DewaltMichael P Pignone
May 4, 2005·Australian Health Review : a Publication of the Australian Hospital Association·Anne JohnsonRita Crane
Aug 4, 2005·Journal of Child Health Care : for Professionals Working with Children in the Hospital and Community·Janet Roden
Aug 17, 2005·International Journal of Nursing Studies·Anne M Williams, Vera F Irurita
Oct 19, 2005·American Journal of Speech-language Pathology·Jeanne M HoffmanLeighton Chan
Jan 25, 2007·International Journal of Nursing Practice·Wendy Penney, Sally J Wellard
Sep 18, 2007·International Journal for Quality in Health Care : Journal of the International Society for Quality in Health Care·Allison TongJonathan Craig
Apr 9, 2008·The Medical Journal of Australia·Rick A M IedemaChristine M Jorm
May 17, 2008·Journal of Clinical Nursing·Anne M WilliamsLinda J Kristjanson
Jun 4, 2008·CMAJ : Canadian Medical Association Journal = Journal De L'Association Medicale Canadienne·Gillian BartlettBrenda MacGibbon
Sep 20, 2008·International Journal for Quality in Health Care : Journal of the International Society for Quality in Health Care·Rick IedemaChristine Jorm
Apr 28, 2010·International Journal of Speech-language Pathology·Anna Mary O'CallaghanLinda Wilson
Aug 11, 2010·Journal of Intellectual & Developmental Disability·Ruth WebberChristine Bigby
Oct 16, 2010·Journal of Advanced Nursing·Kathryn ZeitzAlison Shanks
Dec 15, 2010·Journal of Neuro-oncology·E A LobbA K Nowak
Sep 22, 2011·The Milbank Quarterly·Kathleen Montgomery, Miles Little
Nov 18, 2011·Journal of Child Health Care : for Professionals Working with Children in the Hospital and Community·Karen Ford
Mar 1, 2012·International Journal of Language & Communication Disorders·Robyn O'HalloranLouise Hickson
Mar 16, 2012·Journal of Advanced Nursing·Amy MarshallKathryn Zeitz
Sep 26, 2012·Journal of Cancer Education : the Official Journal of the American Association for Cancer Education·Ian N OlverGraham Rumsby
Nov 8, 2012·International Journal of Stroke : Official Journal of the International Stroke Society·Marian C BradyBrian Williams
Feb 13, 2013·Journal of Clinical Nursing·Joel ZugaiMichael Roche
May 23, 2014·Archives of Disease in Childhood·Sukanya DeJonathan C Craig
Jul 1, 2014·Academic Medicine : Journal of the Association of American Medical Colleges·Bridget C O'BrienDavid A Cook
Aug 16, 2014·The Australian Journal of Rural Health·Donella PiperKate Bower
Oct 26, 2014·BMC Health Services Research·Teresa IaconoPetya Fitzpatrick
Jul 17, 2016·BMC Medical Ethics·Bente HamnesJette Primdahl
Oct 1, 2016·International Journal of Speech-language Pathology·Robyn O'HalloranSue Lamont
Feb 22, 2018·International Journal of Speech-language Pathology·Alastair McEwin, Edward Santow

❮ Previous
Next ❯

Related Concepts

Trending Feeds

COVID-19

Coronaviruses encompass a large family of viruses that cause the common cold as well as more serious diseases, such as the ongoing outbreak of coronavirus disease 2019 (COVID-19; formally known as 2019-nCoV). Coronaviruses can spread from animals to humans; symptoms include fever, cough, shortness of breath, and breathing difficulties; in more severe cases, infection can lead to death. This feed covers recent research on COVID-19.

Blastomycosis

Blastomycosis fungal infections spread through inhaling Blastomyces dermatitidis spores. Discover the latest research on blastomycosis fungal infections here.

Nuclear Pore Complex in ALS/FTD

Alterations in nucleocytoplasmic transport, controlled by the nuclear pore complex, may be involved in the pathomechanism underlying multiple neurodegenerative diseases including Amyotrophic Lateral Sclerosis and Frontotemporal Dementia. Here is the latest research on the nuclear pore complex in ALS and FTD.

Applications of Molecular Barcoding

The concept of molecular barcoding is that each original DNA or RNA molecule is attached to a unique sequence barcode. Sequence reads having different barcodes represent different original molecules, while sequence reads having the same barcode are results of PCR duplication from one original molecule. Discover the latest research on molecular barcoding here.

Chronic Fatigue Syndrome

Chronic fatigue syndrome is a disease characterized by unexplained disabling fatigue; the pathology of which is incompletely understood. Discover the latest research on chronic fatigue syndrome here.

Evolution of Pluripotency

Pluripotency refers to the ability of a cell to develop into three primary germ cell layers of the embryo. This feed focuses on the mechanisms that underlie the evolution of pluripotency. Here is the latest research.

Position Effect Variegation

Position Effect Variagation occurs when a gene is inactivated due to its positioning near heterochromatic regions within a chromosome. Discover the latest research on Position Effect Variagation here.

STING Receptor Agonists

Stimulator of IFN genes (STING) are a group of transmembrane proteins that are involved in the induction of type I interferon that is important in the innate immune response. The stimulation of STING has been an active area of research in the treatment of cancer and infectious diseases. Here is the latest research on STING receptor agonists.

Microbicide

Microbicides are products that can be applied to vaginal or rectal mucosal surfaces with the goal of preventing, or at least significantly reducing, the transmission of sexually transmitted infections. Here is the latest research on microbicides.