Requirements for the collection of electronic PROMS either "in clinic" or "at home" as part of the PROMs, PREMs and Effectiveness Programme (PPEP) in Wales: a feasibility study using a generic PROM tool

Pilot and Feasibility Studies
Susan O'ConnellPROMs, PREMs and Effectiveness Programme

Abstract

The patient-reported outcome measures (PROMs), patient-reported experience measure (PREMs) and Effectiveness Programme (PPEP) launched with the aim of supporting all National Health Service Wales (NHS Wales) organisations to collect PROMs and PREMs across a range of conditions. The aim is to collect generic and condition-specific PROMs and PREMs electronically from every secondary care patient in Wales to provide a measure that can be used to determine the clinical and cost-effectiveness of treatments and services. This study reports on the experience of the PPEP in developing an electronic platform suitable for large-scale data collection, storage, analysis and reporting and identifies the problems encountered and solutions implemented using a generic PROM survey as an example. The generic PROM survey is available in English and Welsh and consists of a consent section and three components: the EQ-5D-5L tool, the Work Productivity and Activity Impairment (WPAI) tool and a number of "about you" questions. The "about you" questions are designed to assess factors which may affect patient health and outcomes such as information on height, weight, smoking history, exercise levels and alcohol consumption. A dedicated PROM database wa...Continue Reading

References

Apr 5, 2005·Value in Health : the Journal of the International Society for Pharmacoeconomics and Outcomes Research·Diane WildUNKNOWN ISPOR Task Force for Translation and Cultural Adaptation
Apr 3, 2008·Value in Health : the Journal of the International Society for Pharmacoeconomics and Outcomes Research·Chad J GwaltneySaul Shiffman
Nov 11, 2009·Value in Health : the Journal of the International Society for Pharmacoeconomics and Outcomes Research·Stephen Joel CoonsUNKNOWN ISPOR ePRO Task Force

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Citations

Dec 4, 2019·The International Journal of Health Planning and Management·Daniel Adrian LunguFranca Melfi
Sep 17, 2020·The American Journal of Hospice & Palliative Care·Jennifer GabbardMariana Murea
Oct 15, 2019·Pilot and Feasibility Studies·Gillian A Lancaster, Lehana Thabane
Aug 21, 2020·Clinical Trials : Journal of the Society for Clinical Trials·Anita WaldenConstance Johnson
Nov 30, 2020·Quality of Life Research : an International Journal of Quality of Life Aspects of Treatment, Care and Rehabilitation·Kathleen WithersGrace Carolan-Rees
May 11, 2021·European Spine Journal : Official Publication of the European Spine Society, the European Spinal Deformity Society, and the European Section of the Cervical Spine Research Society·Francesco LangellaPedro Berjano

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Software Mentioned

CircleBath
Work Productivity and Activity Impairment ( WPAI )
WPAI
EuroQol
PROM
NWIS
Simply
5D
- 5L
Prudent

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