Resilience for family carers of advanced cancer patients-how can health care providers contribute? A qualitative interview study with carers

Palliative Medicine
Ingebrigt RøenAnne Kari Knudsen

Abstract

Caring for advanced cancer patients affects carers' psychological and physical health. Resilience has been defined as "the process of adapting well in the face of adversity, trauma, tragedy, threats or even significant sources of threat." The aim of this study was to explore factors promoting carer resilience, based on carers' experiences with and preferences for health care provider support. Qualitative, semi-structured, individual interviews with family carers of advanced cancer patients were performed until data saturation. The interviews were recorded, transcribed, and analyzed using systematic text condensation. Carers ( n = 14) of advanced cancer patients, not receiving curative treatment, admitted to an integrated curative and palliative care cancer outpatient clinic or to a university hospital cancer clinic, were included. 14 carers of advanced cancer patients were included; 7 men, 7 women, and mean age of 59 years; 3 were bereaved; 12 were partners; 5 had young and teenage children. Four main resilience factors were identified: (1) being seen and known by health care providers-a personal relation; (2) availability of palliative care; (3) information and communication about illness, prognosis, and death; and (4) facilit...Continue Reading

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Citations

Feb 5, 2019·Quality of Life Research : an International Journal of Quality of Life Aspects of Treatment, Care and Rehabilitation·Rebecca MaguirePhil Maguire
Oct 30, 2019·Nursing Open·Anett Skorpen TarbergBodil J Landstad
Apr 27, 2019·Frontiers in Psychiatry·Annina Seiler, Josef Jenewein
Oct 9, 2020·Journal of Clinical Nursing·Anett Skorpen TarbergMarit Kvangarsnes
Mar 5, 2021·Supportive Care in Cancer : Official Journal of the Multinational Association of Supportive Care in Cancer·Ingebrigt RøenAnne Kari Knudsen
Mar 16, 2021·Current Oncology Reports·Sophie Lelorain
Jun 26, 2021·BMC Palliative Care·Anna O'SullivanCecilia Larsdotter
Aug 12, 2021·Enfermería Clínica (English Edition)·Alicia E Hermosilla-ÁvilaLorena Chaparro-Díaz
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Nov 14, 2021·Journal of Nursing Scholarship : an Official Publication of Sigma Theta Tau International Honor Society of Nursing·Li-Yun LeeShu-Ching Chen
Jan 7, 2022·Palliative Medicine·Sophie OpsomerPeter Pype

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