Respite support for children with a life-limiting condition and their parents: a literature review

International Journal of Palliative Nursing
Julie Ling

Abstract

Most children with a life-limiting condition are cared for in the family home by their parents, who require professional support to provide this care. Owing to advances in medicine and medical technology these children are living longer and, given the often relentless and all-encompassing nature of caring for children with life-limiting conditions, respite (facilitation of short breaks) is considered central to quality palliative care provision for children and their families. However, there is still ambiguity in exactly what is meant by the term 'respite', what constitutes respite care, whether the services currently provided meet the needs of the child and family, and how respite is best provided. This paper reviews the literature relating to respite as a component of children's palliative care. Themes from the literature are identified and discussed. Challenges for the providers of respite care are identified and suggestions made regarding the future development of responsive and family-focused respite care.

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Citations

Mar 20, 2014·BMJ Supportive & Palliative Care·Rachel BurbeckBridget Candy
Jul 2, 2014·Journal of Child Health Care : for Professionals Working with Children in the Hospital and Community·Cynthia WardRosemary Ford
Mar 1, 2017·International Journal of Palliative Nursing·Claire QuinnJulie Ling
Mar 2, 2016·International Journal of Palliative Nursing·Tracy K MitchellBarbara A Jack
Apr 27, 2018·Journal for Specialists in Pediatric Nursing : JSPN·Kim E Whitmore, Julia Snethen
Aug 16, 2018·BMJ Supportive & Palliative Care·Helena DunbarJayne Brown
Oct 9, 2019·Journal of Child Health Care : for Professionals Working with Children in the Hospital and Community·Shane MulliganGemma Kiernan
Mar 29, 2020·Journal of Child Health Care : for Professionals Working with Children in the Hospital and Community·Helena Dunbar, Bernie Carter
Feb 24, 2021·Comprehensive Child and Adolescent Nursing·Maryanne MurphyCarmel Doyle
Jun 19, 2021·BMJ Supportive & Palliative Care·Victoria FisherJohanna Taylor

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