Restrictions in social participation of young adults with spina bifida

Disability and Rehabilitation
H A BarfA J H Prevo

Abstract

To determine participation restrictions of young adults with spina bifida (SB) in relation to health condition and activity limitations. A total of 179 persons aged 16-25 years and born with SB participated in a cross-sectional study. The main outcome on four domains of participation (independent living, employment, education and partner relationships) was assessed using a structured questionnaire. At the mean age of 21 years only 16% were living independently, more than one-third of the participants went to special secondary education, 53% of those who finished education did not have a regular job and 71% did not have a partner. Health condition variables (type of SB, hydrocephalus and level of lesion) and to a lesser extent activity limitations (wheelchair dependence and incontinence) were significant determinants for having participation restrictions. Perceived hindrances in participation included long-distance transportation (19-36%), accessibility (10-42%), physical impairments (22-40%), emotional barriers (20-32%) and financial limits (3-17%). More severe SB, defined as hydrocephalus, high level of lesion and wheelchair dependence, was related with more experienced hindrances due to long-distance transportation accessibil...Continue Reading

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Citations

Oct 8, 2011·Disability and Rehabilitation·Marie Peny-DahlstrandGunilla Gosman-Hedström
Jan 29, 2013·Disability and Rehabilitation·M Peny-DahlstrandG Gosman-Hedstrom
Dec 12, 2013·Disability and Rehabilitation·Lin-Ju KangLisa A Chiarello
Oct 19, 2011·Disability and Rehabilitation·Jan Stubberud, Gunnar Riemer
Jun 19, 2013·Disability and Health Journal·Heidi CopeAllison Ashley-Koch
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Oct 5, 2010·Pediatric Clinics of North America·Grayson N HolmbeckKatie A Devine
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