Returning to daily life: a qualitative interview study on parents of childhood cancer survivors in Germany

BMJ Open
Mona Leandra PeikertCorinna Bergelt

Abstract

To investigate experiences of parents of paediatric cancer survivors in cancer-related changes in the parents' daily life (work life, family life, partner relationship and social life) during and after intensive cancer treatment and to examine the reintegration process with its impeding and facilitating factors. The design of this cross-sectional study involves a qualitative content analysis of semistructured interviews. Participants were consecutively recruited in clinical settings throughout Germany. Forty-nine parents (59% female) of 31 cancer survivors (aged 0-17 at diagnosis of leukaemia or central nervous system tumour) were interviewed approximately 16-24 months after the end of intensive cancer treatment (eg, chemotherapy). During treatment, more than 70% of parents reported difficulties reconciling paid work, household and family responsibilities and caring for the ill child. Couples spent little time with each other and approximately 25% reported dispute and burden. Many parents did not have enough energy for pursuing any hobbies during treatment. However, over the long term, being faced with the child's disease also led to strengthened relationships, new priorities, improved communication, increased mutual trust and ...Continue Reading

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Citations

Aug 12, 2020·Psycho-oncology·Mona L PeikertCorinna Bergelt
Jun 8, 2021·Journal of Cancer Survivorship : Research and Practice·Marie H LarsenHanne Cathrine Lie
Jul 25, 2021·Journal of Cancer Survivorship : Research and Practice·Mona L PeikertCorinna Bergelt

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NCT02417324
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Software Mentioned

MAXQDA
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f4transkript
Simple

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