Rural Family Perspectives and Experiences with Early Infant Hearing Detection and Intervention: A Qualitative Study

Journal of Community Health
Julia ElpersMatthew L Bush

Abstract

Infant hearing loss has the potential to cause significant communication impairment. Timely diagnosis and intervention is essential to preventing permanent deficits. Many infants from rural regions are delayed in diagnosis and treatment of hearing loss. The purpose of this study is to characterize the barriers in timely infant hearing healthcare for rural families following newborn newborn hearing screening (NHS) testing. Using stratified purposeful sampling, the study design involved semi-structured phone interviews with parents/guardians of children who failed NHS testing in the Appalachian region of Kentucky between 2012 and 2014 to describe their experiences with early hearing detection and intervention program. Thematic qualitative analysis was performed on interview transcripts to identify common recurring themes in content. 40 parents/guardians participated in the study and consisted primarily of mothers. Demographic data revealed limited educational levels of the participants and 70 % had state-funded insurance coverage. Participants reported barriers in timely infant hearing healthcare that included poor communication of hearing screening results, difficulty in obtaining outpatient testing, inconsistencies in healthcar...Continue Reading

References

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Apr 17, 2004·The Journal of Rural Health : Official Journal of the American Rural Health Association and the National Rural Health Care Association·Eugene J LengerichPamela K Brown
Oct 3, 2007·Pediatrics·UNKNOWN American Academy of Pediatrics, Joint Committee on Infant Hearing
Jul 4, 2008·Pediatrics·Heidi D NelsonUNKNOWN 2001 US Preventive Services Task Force
Aug 13, 2010·Pediatrics·Melissa McCarthyKarl R White
May 31, 2012·Journal of Health Care for the Poor and Underserved·Nengliang YaoMarianne M Hillemeier
Mar 27, 2013·Pediatrics·UNKNOWN Joint Committee on Infant Hearing of the American Academy of PediatricsBeth Martin
Oct 19, 2013·Otology & Neurotology : Official Publication of the American Otological Society, American Neurotology Society [and] European Academy of Otology and Neurotology·Matthew L BushJennifer B Shinn
Nov 5, 2013·The Journal of Pediatrics·Matthew L BushNancy Schoenberg
Jan 10, 2014·The Laryngoscope·Matthew L BushNancy Schoenberg
Feb 13, 2015·Journal of Community Health·Matthew L BushJennifer B Shinn

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Citations

Apr 6, 2019·Journal of Community Health·Whitney PowellClaire Snell-Rood
Jul 1, 2017·Current Opinion in Otolaryngology & Head and Neck Surgery·Matthew L BushBeth N McNulty
May 1, 2021·International Journal of Environmental Research and Public Health·Edyta PilkaHenryk Skarzynski

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