Safeguarding donors' personal rights and biobank autonomy in biobank networks: the CRIP privacy regime

Cell and Tissue Banking
Christina SchröderJochen Taupitz

Abstract

Governance, underlying general ICT (Information and Communication Technology) architecture, and workflow of the Central Research Infrastructure for molecular Pathology (CRIP) are discussed as a model enabling biobank networks to form operational "meta biobanks" whilst respecting the donors' privacy, biobank autonomy and confidentiality, and the researchers' needs for appropriate biospecimens and information, as well as confidentiality. Tailored to these needs, CRIP efficiently accelerates and facilitates research with human biospecimens and data.

References

Aug 6, 2005·Nature Biotechnology·Bartha Maria Knoppers, Madelaine Saginur
Apr 7, 2007·Nature Medicine·Emily Waltz
Oct 6, 2007·Briefings in Functional Genomics & Proteomics·Martin Asslaber, Kurt Zatloukal
Oct 26, 2007·Briefings in Bioinformatics·Martin YuilleKurt Zatloukal
Jun 27, 2008·Journal of the American Medical Informatics Association : JAMIA·Khaled El Emam, Fida Kamal Dankar
Oct 16, 2008·Theoretical Medicine and Bioethics·Lars Oystein Ursin
May 28, 2009·European Journal of Human Genetics : EJHG·Joanna Stjernschantz ForsbergStefan Eriksson
Jul 25, 2009·Kennedy Institute of Ethics Journal·Alexander Morgan CapronNikola Biller-Andorno
Aug 13, 2009·Cell and Tissue Banking·Martin YuilleWilliam Ollier
Mar 1, 2010·Personalized Medicine·Herbert Gottweis, Georg Lauss

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