Satisfaction with genetic counseling for BRCA1 and BRCA2 mutations among African American women

Patient Education and Counseling
Sarah CharlesChanita Hughes Halbert

Abstract

The objective of this study was to evaluate satisfaction with genetic counseling for BRCA1 and BRCA2 (BRCA1/2) mutations among African American women. Participants were 54 African American women at moderate and high risk for BRCA1/2 mutations who were offered genetic testing as part of a randomized clinical trial designed to compare the effects of culturally tailored genetic counseling (CTGC) and standard genetic counseling (SGC). Satisfaction with genetic counseling was evaluated using a self-administered questionnaire following culturally tailored or standard pre-test education and counseling. Overall, the majority of women (96%) were very satisfied with genetic counseling; however, only 26% reported that their worries were lessened and 22% reported that they were able to cope better. Women who received CTGC were significantly more likely than women who received SGC to report that their worries were lessened (p<0.05). In addition, women with household incomes less than US$ 35,000 were significantly more likely to report that the counselor lessened their worries compared to women with higher incomes (p<0.05). Most African American women were satisfied with genetic counseling; however, women who received culturally tailored gen...Continue Reading

References

Jan 1, 1992·Journal of Cancer Education : the Official Journal of the American Association for Cancer Education·R MichielutteE M Schroeder
Dec 1, 1990·American Journal of Medical Genetics·S ShilohR M Goodman
Dec 1, 1996·Journal of Health and Social Behavior·C M Brown, R Segal
Jan 15, 1997·Journal of the National Cancer Institute·C LermanM M Reed
May 15, 1997·The New England Journal of Medicine·F J CouchB L Weber
Nov 14, 1997·Patient Education and Counseling·C HughesC Lerman
Jun 17, 1998·JAMA : the Journal of the American Medical Association·D R LanninM S Edwards
Aug 26, 1998·Social Work in Health Care·J N Bourjolly
Mar 1, 1995·Medical Care Research and Review : MCRR·C van CampenL Peters
Apr 20, 2001·Patient Education and Counseling·K P TercyakA C Cruz
Mar 16, 2002·Journal of Clinical Oncology : Official Journal of the American Society of Clinical Oncology·Thomas S FrankGregory C Critchfield
Feb 15, 2003·Journal of Clinical Oncology : Official Journal of the American Society of Clinical Oncology·Susan M DomchekBarbara L Weber
Mar 26, 2003·American Journal of Medical Genetics. Part a·Bonnie Jeanne BatySara Marie Ellis
Jun 7, 2003·Health Psychology : Official Journal of the Division of Health Psychology, American Psychological Association·Kathryn L TaylorMary Hrywna
Aug 2, 2003·American Journal of Public Health·Susan N LukwagoCelette Sugg Skinner
Apr 19, 2005·Genetics in Medicine : Official Journal of the American College of Medical Genetics·Lisa KesslerChanita Hughes Halbert
Sep 6, 2005·Gynecologic Oncology·Cheryl L Holt, Patrick R Klem
Nov 1, 2005·Journal of Clinical Oncology : Official Journal of the American Society of Clinical Oncology·Chanita Hughes HalbertE Paul Wileyto

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Citations

Feb 7, 2007·Journal of Genetic Counseling·Cathrine BjorvatnGunilla Berglund
May 8, 2009·Journal of Genetic Counseling·Tammy M BeranBarry L Burgess
Jan 16, 2010·Journal of Genetic Counseling·Robert G RestaChristina G S Palmer
Oct 12, 2012·Journal of Genetic Counseling·Suzanne MellonMichael S Simon
Nov 24, 2011·Journal of Community Genetics·Jo-Anne Manswell ButtyKerry-Ann Munroe
Dec 2, 2008·Journal of Psychosocial Oncology·Susan T VadaparampilCheryl A Miree
Oct 21, 2009·Current Opinion in Obstetrics & Gynecology·Allison W Kurian
Mar 5, 2010·Cancer Epidemiology, Biomarkers & Prevention : a Publication of the American Association for Cancer Research, Cosponsored by the American Society of Preventive Oncology·Kristi D GravesChanita Hughes Halbert
Oct 13, 2011·Journal of Clinical Oncology : Official Journal of the American Society of Clinical Oncology·Chanita Hughes HalbertSusan Domchek
Mar 15, 2014·Genetics in Medicine : Official Journal of the American College of Medical Genetics·Stacy W GrayUNKNOWN CSER Consortium Outcomes and Measures Working Group
Feb 26, 2008·Patient Education and Counseling·Cathrine BjorvatnOdd E Havik
Dec 14, 2007·American Journal of Medical Genetics. Part a·Chanita Hughes HalbertSusan Domchek
Apr 2, 2010·American Journal of Medical Genetics. Part a·Jennifer Permuth-WeyTuya Pal
Aug 15, 2014·Journal of Genetic Counseling·Katarina M SussnerHeiddis B Valdimarsdottir
Jul 13, 2016·Journal of Genetic Counseling·Alejandra Hurtado-de-MendozaVanessa B Sheppard
Feb 29, 2020·Journal of Genetic Counseling·Lisa Jay Kessler, Rosaria Love
Feb 18, 2012·The Cochrane Database of Systematic Reviews·Jennifer S HilgartRachel Iredale
Mar 16, 2017·Journal of Genetic Counseling·Galen JosephJanice Ka Yan Cheng
Mar 27, 2018·American Journal of Medical Genetics. Part C, Seminars in Medical Genetics·Chanita H Halbert, Barbara W Harrison
Mar 4, 2017·Journal of Genetic Counseling·Barbara A AthensBarbara B Biesecker
Mar 24, 2020·Journal of Human Genetics·Hiroko Terui-KohbataMasayuki Yoshida
Jan 1, 2016·Personalized Medicine·Kimberly A Kaphingst, Melody S Goodman
Dec 6, 2020·Journal of Genetic Counseling·Barbara B BieseckerGalen Joseph
May 12, 2021·Genetics in Medicine : Official Journal of the American College of Medical Genetics·Jennifer L YoungHolly K Tabor
Nov 9, 2021·The Cochrane Database of Systematic Reviews·Janet JullDawn Stacey
Nov 16, 2021·Journal of Telemedicine and Telecare·Savannah BinionMarc D Schwartz

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