Self-reported measures in health research for people with intellectual disabilities: an inclusive pilot study on suitability and reliability

BMC Medical Research Methodology
Kristel Vlot-van AnrooijJenneken Naaldenberg

Abstract

The lack of suitable and reliable scales to measure self-reported health and health behaviour among people with intellectual disabilities (ID) is an important methodological challenge in health research. This study, which was undertaken together with co-researchers with ID, explores possibilities for self-reported health scales by adjusting, testing, and reflecting on three self-reported health scales. In an inclusive process, the researchers and co-researchers with ID adjusted the SBQ (sedentary behaviour), SQUASH (physical activity), and SRH (self-reported health) scales, after which a test-retest study among adults with ID was performed. Test outcomes were analysed on suitability and test-retest reliability, and discussed with the co-researchers with ID to reflect on outcomes and to make further recommendations. Main adjustments made to the scales included: use easy words, short sentences, and easy answer formats. Suitability (N = 40) and test-retest reliability (N = 15) was higher for the adjusted SQUASH (SQUASH-ID), in which less precise time-based judgements are sought, than in the adjusted SBQ (SBQ-ID). Suitability and test-retest reliability were fair to moderate for the SRH-ID and CHS-ID. The main outcome from the refl...Continue Reading

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Citations

Jul 13, 2019·Special Care in Dentistry : Official Publication of the American Association of Hospital Dentists, the Academy of Dentistry for the Handicapped, and the American Society for Geriatric Dentistry·Archana PradhanRatilal Lalloo
Jan 16, 2021·European Journal of Paediatric Neurology : EJPN : Official Journal of the European Paediatric Neurology Society·David GosarDamjan Osredkar
Oct 29, 2020·European Journal of Paediatric Neurology : EJPN : Official Journal of the European Paediatric Neurology Society·David GosarDamjan Osredkar
Jul 18, 2021·Journal of Applied Research in Intellectual Disabilities : JARID·I-Ting HwangJessica M Kramer
Jul 28, 2021·Journal of Applied Research in Intellectual Disabilities : JARID·María Dolores Gil-LlarioRafael Ballester-Arnal

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Software Mentioned

SQUASH
Limesurvey
SBQ
ID

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