Sense of coherence in young people with congenital heart disease

Journal of Developmental and Behavioral Pediatrics : JDBP
Silke ApersPhilip Moons

Abstract

Patient-reported outcomes (PROs) have been found to play a role in the development of clinical complications. Hence, it is crucial to understand why some patients do well in terms of PROs and others do not and to identify these groups of patients. Sense of coherence (SOC), capturing a person's outlook on life, is associated with PROs in adolescents with congenital heart disease (CHD). Therefore, we (1) examine how SOC develops in young people with CHD, (2) identify subgroups of SOC development, and (3) characterize subgroups in terms of demographic and clinical variables and PROs. In this 4-wave longitudinal study, 429 adolescents with CHD (53.4% boys; median age = 16.3 years) completed assessments of SOC (SOC-13). PROs included quality of life (linear analog scale), loneliness (UCLA-8), depression (CES-D), and perceived health (PedsQL). Latent class growth analysis was used to identify clinically meaningful subgroups of SOC development. Patients with CHD had a moderate SOC that slightly decreased over the first 18 months. Four subgroups of SOC development emerged: Consistently High (27%), Intermediate Stable (41%), Intermediate Decreasing (25%), and Chronically Low (7%). Subgroups differed in terms of sex and PROs, but not in ...Continue Reading

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Citations

Mar 5, 2016·International Journal of Qualitative Studies on Health and Well-being·Silke ApersUNKNOWN I-DETACH Investigators
Jun 28, 2018·European Journal of Cardiovascular Nursing : Journal of the Working Group on Cardiovascular Nursing of the European Society of Cardiology·Philip Moons, Tone M Norekval
Aug 23, 2017·European Journal of Cardiovascular Nursing : Journal of the Working Group on Cardiovascular Nursing of the European Society of Cardiology·Hui-Ru HuangPei-Kwei Tsai
Jun 12, 2020·European Journal of Cardiovascular Nursing : Journal of the Working Group on Cardiovascular Nursing of the European Society of Cardiology·Philip MoonsUNKNOWN APPROACH-IS consortium and the International Society for Adult Congenital Heart Disease (ISACHD)
Jul 22, 2017·Quality of Life Research : an International Journal of Quality of Life Aspects of Treatment, Care and Rehabilitation·A HeuschG Calaminus
May 27, 2020·The Journal of Cardiovascular Nursing·Laura H HaysReid D Landes
Jul 18, 2020·Journal of Pediatric Nursing·Shefaly Shorey, Esperanza Debby Ng
Feb 13, 2021·International Journal of Environmental Research and Public Health·Ana Anguas-GraciaFernando Urcola-Pardo
Feb 12, 2021·European Journal of Cardiovascular Nursing : Journal of the Working Group on Cardiovascular Nursing of the European Society of Cardiology·Philip MoonsUNKNOWN APPROACH-IS consortium and the International Society for Adult Congenital Heart Disease (ISACHD)
Dec 6, 2021·European Journal of Cardiovascular Nursing : Journal of the Working Group on Cardiovascular Nursing of the European Society of Cardiology·Inwon NaPhilip Moons

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