Sexual Orientation and Gender Identity Data Collection in Clinical Settings and in Electronic Health Records: A Key to Ending LGBT Health Disparities

LGBT Health
Sean R Cahill, Harvey J Makadon

Abstract

The Institute of Medicine's (IOM's) 2011 report on the health of LGBT people pointed out that there are limited health data on these populations and that we need more research. It also described what we do know about LGBT health disparities, including lower rates of cervical cancer screening among lesbians, and mental health issues related to minority stress. Patient disclosure of LGBT identity enables provider-patient conversations about risk factors and can help us reduce and better understand disparities. It is essential to the success of Healthy People 2020's goal of eliminating LGBT health disparities. This is why the IOM's report recommended data collection in clinical settings and on electronic health records (EHRs). The Center for Medicare and Medicaid Services and the Office of the National Coordinator of Health Information Technology rejected including sexual orientation and gender identity (SOGI) questions in meaningful use guidelines for EHRs in 2012 but are considering this issue again in 2013. There is overwhelming community support for the routine collection of SOGI data in clinical settings, as evidenced by comments jointly submitted by 145 leading LGBT and HIV/AIDS organizations in January 2013. Gathering SOGI ...Continue Reading

References

Oct 6, 2000·American Journal of Preventive Medicine·A L DiamantJ Lever
Oct 14, 2000·Archives of Family Medicine·B G ValanisR A Carter
Sep 24, 2002·Journal of Homosexuality·Robert L Klitzman, Jason D Greenberg
Aug 10, 2006·Journal of Urban Health : Bulletin of the New York Academy of Medicine·Bonnie D KerkerLorna Thorpe
Apr 28, 2007·American Journal of Public Health·Ulrike BoehmerGreta R Bauer
Jun 28, 2007·Journal of Homosexuality·Davey M Smith, Wm Christopher Mathews
May 1, 2008·American Journal of Public Health·Kenneth H MayerStewart Landers
Jun 3, 2010·American Journal of Public Health·Kerith J ConronStewart J Landers
Apr 5, 2011·Cleveland Clinic Journal of Medicine·Harvey J Makadon
Aug 30, 2011·The Journal of Law, Medicine & Ethics : a Journal of the American Society of Law, Medicine & Ethics·Sharona Hoffman, Andy Podgurski
Sep 9, 2011·JAMA : the Journal of the American Medical Association·Juno Obedin-MaliverMitchell R Lunn
Sep 29, 2011·Archives of Internal Medicine·Timothy S LooMary Beth Hamel

❮ Previous
Next ❯

Citations

Jul 8, 2015·Journal of Psychosocial Nursing and Mental Health Services·Andraya Zelle, Tamatha Arms
Jan 21, 2016·LGBT Health·William Byne
Aug 13, 2015·Journal of Clinical Nursing·Rebecca CarabezMegan Scott
Apr 6, 2016·The Journal of Sexual Medicine·Lindsay CollinMichael Goodman
Jul 18, 2015·CA: a Cancer Journal for Clinicians·Gwendolyn P QuinnMatthew B Schabath
Mar 18, 2015·Journal of Urban Health : Bulletin of the New York Academy of Medicine·Sari L ReisnerKenneth Mayer
Jan 7, 2015·Journal of General Internal Medicine·Madeline B Deutsch, David Buchholz
Feb 25, 2014·Addictive Behaviors·Annesa FlentjeJames L Sorensen
Jun 2, 2014·The Journal of the Association of Nurses in AIDS Care : JANAC·Madeline B DeutschStarley B Shade
Jan 13, 2015·The Journal of Adolescent Health : Official Publication of the Society for Adolescent Medicine·Sari L ReisnerMatthew J Mimiaga
Aug 28, 2014·Academic Medicine : Journal of the Association of American Medical Colleges·Edward J CallahanDarin Latimore
Aug 6, 2014·Clinical Journal of Oncology Nursing·Liz Margolies
May 31, 2016·Journal of Clinical Nursing·Billy A CaceresDeborah Chyun
Feb 17, 2017·American Journal of Public Health·Billy A CaceresDeborah Chyun
Feb 25, 2017·Academic Emergency Medicine : Official Journal of the Society for Academic Emergency Medicine·Allysha C Maragh-BassAdil H Haider
Jun 8, 2017·Future Oncology·Alec W GibsonShilpen Patel
Jan 11, 2017·European Journal of Oncology Nursing : the Official Journal of European Oncology Nursing Society·Mohamad M SaabJosephine Hegarty
Aug 2, 2017·Archives of Suicide Research : Official Journal of the International Academy for Suicide Research·Gloria FraserLynne Russell
Oct 19, 2017·Special Care in Dentistry : Official Publication of the American Association of Hospital Dentists, the Academy of Dentistry for the Handicapped, and the American Society for Geriatric Dentistry·Masahiro HeimaElisabeth C Roccoforte
Apr 22, 2016·American Journal of Men's Health·Sabina HirshfieldMary Ann Chiasson
Nov 18, 2018·Journal of the American Medical Informatics Association : JAMIA·Chris GrassoAlex S Keuroghlian
Jan 17, 2019·Journal of Clinical Oncology : Official Journal of the American Society of Clinical Oncology·Matthew B SchabathGwendolyn P Quinn
Jun 21, 2019·American Journal of Public Health·Chris GrassoAlex S Keuroghlian
Apr 11, 2019·Obstetrics and Gynecology·Madelyne Z GreeneJenny A Higgins
Feb 14, 2019·Journal of Research on Adolescence : the Official Journal of the Society for Research on Adolescence·Ryan J WatsonRebecca M Puhl
Feb 7, 2018·Computers, Informatics, Nursing : CIN·Jordon D BosseRagnhildur I Bjarnadottir
Apr 27, 2020·Nicotine & Tobacco Research : Official Journal of the Society for Research on Nicotine and Tobacco·Sarah S DermodyErin A Vogel

❮ Previous
Next ❯

Software Mentioned

ONCHIT
SOGI

Related Concepts

Trending Feeds

COVID-19

Coronaviruses encompass a large family of viruses that cause the common cold as well as more serious diseases, such as the ongoing outbreak of coronavirus disease 2019 (COVID-19; formally known as 2019-nCoV). Coronaviruses can spread from animals to humans; symptoms include fever, cough, shortness of breath, and breathing difficulties; in more severe cases, infection can lead to death. This feed covers recent research on COVID-19.

Blastomycosis

Blastomycosis fungal infections spread through inhaling Blastomyces dermatitidis spores. Discover the latest research on blastomycosis fungal infections here.

Nuclear Pore Complex in ALS/FTD

Alterations in nucleocytoplasmic transport, controlled by the nuclear pore complex, may be involved in the pathomechanism underlying multiple neurodegenerative diseases including Amyotrophic Lateral Sclerosis and Frontotemporal Dementia. Here is the latest research on the nuclear pore complex in ALS and FTD.

Applications of Molecular Barcoding

The concept of molecular barcoding is that each original DNA or RNA molecule is attached to a unique sequence barcode. Sequence reads having different barcodes represent different original molecules, while sequence reads having the same barcode are results of PCR duplication from one original molecule. Discover the latest research on molecular barcoding here.

Chronic Fatigue Syndrome

Chronic fatigue syndrome is a disease characterized by unexplained disabling fatigue; the pathology of which is incompletely understood. Discover the latest research on chronic fatigue syndrome here.

Evolution of Pluripotency

Pluripotency refers to the ability of a cell to develop into three primary germ cell layers of the embryo. This feed focuses on the mechanisms that underlie the evolution of pluripotency. Here is the latest research.

Position Effect Variegation

Position Effect Variagation occurs when a gene is inactivated due to its positioning near heterochromatic regions within a chromosome. Discover the latest research on Position Effect Variagation here.

STING Receptor Agonists

Stimulator of IFN genes (STING) are a group of transmembrane proteins that are involved in the induction of type I interferon that is important in the innate immune response. The stimulation of STING has been an active area of research in the treatment of cancer and infectious diseases. Here is the latest research on STING receptor agonists.

Microbicide

Microbicides are products that can be applied to vaginal or rectal mucosal surfaces with the goal of preventing, or at least significantly reducing, the transmission of sexually transmitted infections. Here is the latest research on microbicides.