Shared patient and provider values in end-stage renal disease decision making: Identifying the tensions

Patient Education and Counseling
Ann E VandenbergLaura C Plantinga

Abstract

To examine concordance and tensions in values among stakeholder groups across the shared decision making process for end-stage renal disease patients treated with hemodialysis. A thematic analysis of transcripts from three stakeholder groups: hemodialysis patients (2 groups, n = 17), nephrologists (1 group, n = 9), and non-physician providers (dietitians, social workers, and registered nurses) (1 group, n = 8). A framework of decision-making components (communication, information, decision, behavior, and outcome) guided analysis of values within and across groups. Shared values included communication that informed patients and involved family; information about function, trajectory, life context, and patient experience; behavior to manage diet; and outcomes of function, safety, and survival. Identified thematic tensions in patient-provider values were: personalized vs. routinized communication; shared vs. separate information; managed vs. adherent behavior; and participating vs. protected outcome. Patient behavior emerged as a contested area of control. Emphasizing shared values and bridging values conflicts may ease tensions surrounding self-care behavior by facilitating discussions about diet, medications, and consistent dial...Continue Reading

Citations

Nov 28, 2019·BMC Health Services Research·Laura C PlantingaC Barrett Bowling
Mar 12, 2020·Journal of Clinical Nursing·Tone Andersen-HollekimBodil J Landstad
Feb 18, 2021·BMC Nephrology·Tone Andersen-HollekimTorstein Hole

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