Sickle cell disease perceptions of caregivers, adolescent, and adult patients: Barriers and facilitators to medical care adherence.

Journal of Advanced Nursing
Delphine HoegyAudrey Janoly-Dumenil

Abstract

To provide an understanding of medical care adherence factors as reported by caregivers, adolescent, and adult patients with sickle cell disease and to analyse those concerns to identify barriers and facilitators about medical care adherence. Three topics influenced medical care adherence: the disease itself, therapeutics, and the healthcare system. This study will focus on the first topic. Qualitative explorative study, using semi-structured and life-experience interviews and manual inductive content analysis. From December 2016 - March 2017, one semi-structured interview was conducted by a researcher with each of the 15 adolescent patients, 10 adult patients, and 19 caregivers in a French public hospital. Interviews were audio-taped and transcribed before a content analysis. Perceptions were classified into barriers and facilitators of medical care adherence. This article presents disease perceptions of caregivers and patients (adolescents and adults): daily management and social representations. These perceptions differ among parents, adolescent patients, and adult patients. However, all report important disease-related "limitations" in their lives. The objective for adults (parents and patients) is to "live with the disease...Continue Reading

References

Dec 1, 1996·Hematology/oncology Clinics of North America·T R Kinney, R E Ware
Dec 12, 2003·European Journal of Cardiovascular Nursing : Journal of the Working Group on Cardiovascular Nursing of the European Society of Cardiology·Sabina De Geest, Eduardo Sabaté
Oct 6, 2005·Qualitative Health Research·Hsiu-Fang Hsieh, Sarah E Shannon
Sep 18, 2007·International Journal for Quality in Health Care : Journal of the International Society for Quality in Health Care·Allison TongJonathan Craig
Mar 21, 2008·Journal of Advanced Nursing·Satu Elo, Helvi Kyngäs
Jul 29, 2009·Journal of Pediatric Hematology/oncology·Lori E CrosbyMonica J Mitchell
Mar 3, 2010·Blood·Charles T QuinnGeorge R Buchanan
Apr 14, 2010·Issues in Comprehensive Pediatric Nursing·J Carolyn GraffSusan L Neely-Barnes
Dec 7, 2010·Lancet·David C ReesMark T Gladwin
Sep 6, 2015·International Journal of Qualitative Studies on Health and Well-being·Andrea Brown ForresterJascinth L M Lindo
Sep 10, 2015·Journal of Advanced Nursing·Nadine MatthieCoretta Jenerette
Nov 5, 2015·Journal of Pediatric Nursing·Kimberly M WesleyJerlym S Porter
Dec 23, 2015·Social Science & Medicine·Rebekah M Ciribassi, Crystal L Patil
Jun 1, 2017·Journal of Pediatric Hematology/oncology·Lisa M IngerskiWinfred C Wang
Jan 23, 2018·International Journal of Nursing Studies·Brenda Agyeiwaa PokuSusan Kirk
Aug 22, 2018·Hematology, Transfusion and Cell Therapy·Sumaya Giarola CecilioHeloísa de Carvalho Torres

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