Silence pact from the perspective of caretakers of palliative care patients

Enfermería clínica
Ángela Cejudo LópezCarlota de la Fuente Rodríguez

Abstract

To determine why terminally-ill patients, family caregivers and health care providers make a pact of silence about the terminal status of the patient, and to identify the attitudes, experiences and opinions of family caregivers concerning the conspiracy of silence in palliative care. A qualitative phenomenological study based on an interpretive analysis, conducted in Primary Health Care, Seville, Spain. Study dimensions: knowledge of the diagnosis and prognosis of the condition; disclosure of information; reaction to information received, feelings and approach to death; information disclosed to the patient and reasons behind partial disclosure; communication between patients, families, and health care providers. Family caregivers of patients on palliative care suspicious about a pact of silence. Family caregivers hamper professional-patient communication; use of deceit to conceal the truth; suspicion that the patient knows the truth; the clinician conceals the truth; paternalist attitudes; feelings of sadness, grief, resignation, acceptance of the disease. The pact of silence has negative effects on coping with death, quality of life in the last days of life, and mourning. Communication between patients, health care providers, ...Continue Reading

References

Sep 12, 2007·Palliative Medicine·Karen HancockMartin H N Tattersall
Jan 29, 2011·Palliative Medicine·Emmanuelle BélangerDanielle Groleau
Mar 31, 2011·Annals of Oncology : Official Journal of the European Society for Medical Oncology·R R L FumisA Del Giglio

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Citations

Aug 16, 2016·Enfermería clínica·Olivia Ibáñez-MaseroFernando Relinque Medina
May 23, 2019·Nursing Ethics·Verónica Tíscar-GonzálezElizabeth Peter

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