Social participation of diabetes and ex-leprosy patients in the Netherlands and patient preference for combined self-care groups

Frontiers in Medicine
Henry J C de VriesWim H Van Brakel

Abstract

Earlier, we showed that neuropathic complications limit social participation of ex-leprosy patients, even in a non-endemic leprosy setting like the Netherlands. Self-care groups for ex-leprosy patients can strengthen self-worth of participants, prevent further handicap, and enable the exchange of coping strategies. For non-endemic leprosy settings with a very low rate of leprosy patients, a self-care group exclusively for (ex)leprosy patients is not likely to be feasible. A combined group with patients facing comparable morbidity would be more efficient than disease-specific self-care groups. Here, we studied the comparability in social constraints of diabetic patients and ex-leprosy patients. Moreover, we investigated if combined self-care groups for ex-leprosy patients and diabetic patients would be desirable and acceptable for possible participants. Social participation was studied based on in-depth interviews and Participation Scale information collected from 41 diabetic patients and compared with the data of 31 ex-leprosy patients from a prior study. Moreover, we made an inventory of potential strengths and limitations and attitudes toward combined self-care groups for diabetic patients with neuropathy. The following theme...Continue Reading

References

Jan 1, 1990·Social Science & Medicine·M J Stewart
Jan 1, 1990·Journal of Personality and Social Psychology·G A Dakof, S E Taylor
Jan 1, 1981·Social Science & Medicine. Medical Anthropology·S Hopper
Apr 11, 2001·QJM : Monthly Journal of the Association of Physicians·D N Lockwood, A J Reid
Mar 1, 2005·Diabetes Care·William H PolonskyRichard A Jackson
Feb 10, 2006·Disability and Rehabilitation·Wim H van BrakelRobert K Das-Pattanayak

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