PMID: 9431500Feb 12, 1998Paper

Social support in families of children with chronic conditions: supportive and nonsupportive behaviors

Journal of Developmental and Behavioral Pediatrics : JDBP
J M PattersonR W Blum

Abstract

We questioned parents of 182 young children with a variety of chronic health conditions concerning the amount of emotional, informational, and tangible social support they received from the family, community, and service providers. We also asked parents to describe nonsupportive or hurtful behaviors received from family or community members. Both mothers and fathers reported that family members provided the most emotional and tangible social support and service providers the most informational support. The amount of perceived support from all sources increased over time, but 78% of mothers and 60% of fathers reported at least one instance of nonsupport from these same sources, primarily from extended family members and health professionals. We encourage health professionals to show respect and to provide timely, accurate information in a sensitive manner to parents whose child has a chronic health condition and to assist parents in handling nonsupportive behaviors from family and friends.

Citations

Sep 13, 2006·Journal of Genetic Counseling·Virginia Rondero HernandezMary S Tijerina
Mar 26, 2003·Social Science & Medicine·Gail Landsman
May 9, 2012·Journal of Developmental and Behavioral Pediatrics : JDBP·April Idalski CarconeSylvie Naar-King
Mar 13, 2002·Ambulatory Pediatrics : the Official Journal of the Ambulatory Pediatric Association·R G ChernoffH T Ireys
Jun 26, 2003·The Kaohsiung Journal of Medical Sciences·Li-Min Wu, Chi-Chun Chin
Sep 29, 2009·Journal of Pediatric Nursing·Maria BjörkInger Hallström
Jun 27, 2012·Pediatric Hematology and Oncology·Giovanna PerriconeCinzia Favara Scacco
Jun 22, 2000·Seminars in Neonatology : SN·K Deater-Deckard, J Bulkley
Feb 7, 2009·Journal of Psychosocial Oncology·Alun C JacksonRanee Gedye
Jan 1, 2017·Journal of Genetic Counseling·Tatiane YanesBarbara Biesecker
Feb 1, 2008·Qualitative Health Research·Anne NeufeldKaren Hughes
Sep 25, 2001·American Journal of Medical Genetics·E T RosenthalB B Biesecker
Mar 29, 2018·Journal of Pediatric Oncology Nursing : Official Journal of the Association of Pediatric Oncology Nurses·Mary Baron NelsonKimberly Arellano
Oct 4, 2002·International Journal of Palliative Nursing·Marie ToddDeirdre Moriarty
Jun 10, 2000·Journal of Advanced Nursing·M StewartL Makrides
May 10, 2002·Pediatric Allergy and Immunology : Official Publication of the European Society of Pediatric Allergy and Immunology·Per A GustafssonBengt Björkstén

❮ Previous
Next ❯

Related Concepts

Trending Feeds

COVID-19

Coronaviruses encompass a large family of viruses that cause the common cold as well as more serious diseases, such as the ongoing outbreak of coronavirus disease 2019 (COVID-19; formally known as 2019-nCoV). Coronaviruses can spread from animals to humans; symptoms include fever, cough, shortness of breath, and breathing difficulties; in more severe cases, infection can lead to death. This feed covers recent research on COVID-19.

Blastomycosis

Blastomycosis fungal infections spread through inhaling Blastomyces dermatitidis spores. Discover the latest research on blastomycosis fungal infections here.

Nuclear Pore Complex in ALS/FTD

Alterations in nucleocytoplasmic transport, controlled by the nuclear pore complex, may be involved in the pathomechanism underlying multiple neurodegenerative diseases including Amyotrophic Lateral Sclerosis and Frontotemporal Dementia. Here is the latest research on the nuclear pore complex in ALS and FTD.

Applications of Molecular Barcoding

The concept of molecular barcoding is that each original DNA or RNA molecule is attached to a unique sequence barcode. Sequence reads having different barcodes represent different original molecules, while sequence reads having the same barcode are results of PCR duplication from one original molecule. Discover the latest research on molecular barcoding here.

Chronic Fatigue Syndrome

Chronic fatigue syndrome is a disease characterized by unexplained disabling fatigue; the pathology of which is incompletely understood. Discover the latest research on chronic fatigue syndrome here.

Evolution of Pluripotency

Pluripotency refers to the ability of a cell to develop into three primary germ cell layers of the embryo. This feed focuses on the mechanisms that underlie the evolution of pluripotency. Here is the latest research.

Position Effect Variegation

Position Effect Variagation occurs when a gene is inactivated due to its positioning near heterochromatic regions within a chromosome. Discover the latest research on Position Effect Variagation here.

STING Receptor Agonists

Stimulator of IFN genes (STING) are a group of transmembrane proteins that are involved in the induction of type I interferon that is important in the innate immune response. The stimulation of STING has been an active area of research in the treatment of cancer and infectious diseases. Here is the latest research on STING receptor agonists.

Microbicide

Microbicides are products that can be applied to vaginal or rectal mucosal surfaces with the goal of preventing, or at least significantly reducing, the transmission of sexually transmitted infections. Here is the latest research on microbicides.