Sociocultural and psychological features of perceived stigma reported by people with epilepsy in Benin

Epilepsia
Florentina RafaelPierre-Marie Preux

Abstract

Stigma is a major burden of epilepsy. In sub-Saharan Africa the few studies that addressed epilepsy stigma emphasize enacted, rather than perceived, stigma. This inattention may compromise clinical management and delay help seeking, thereby contributing to the treatment gap. We assessed perceived stigma and identified sociocultural and psychological factors explaining greater stigma among people with epilepsy (PWE) in Benin. PWE included in this study were ascertained using a door-to-door survey in the general population in a Beninese rural area. We applied both qualitative and quantitative research methods to assess stigma and patient's experience and beliefs. An Explanatory Model Interview Catalogue (EMIC) and verbally administered questionnaires provided data for demographic, clinical, and sociocultural features. Sociocultural features were evaluated in terms of illness-related experience and sociocultural representations of epilepsy. Depression and anxiety were also screened. Eighty PWE were included. About 68.7% reported feeling stigmatized. Multivariate regression revealed that factors independently associated with perceived stigma were experience of social isolation (p < 0.001), experience of marital problems (p < 0.01),...Continue Reading

References

Jun 1, 1992·The British Journal of Psychiatry : the Journal of Mental Science·M G WeissR Fernandes
Oct 8, 1988·BMJ : British Medical Journal·D GoldbergD Grayson
Nov 26, 1999·European Psychiatry : the Journal of the Association of European Psychiatrists·P HuberJ P Michel
Mar 31, 2000·Social Science & Medicine·C VlassoffP Shetabi
Jun 16, 2000·Quality of Life Research : an International Journal of Quality of Life Aspects of Treatment, Care and Rehabilitation·D BuckN Steen
Feb 13, 2003·Epilepsia·Julie DoughtyVirginie Lavaud
Mar 1, 2003·Epilepsy & Behavior : E&B·Ria Reis, Harry Meinardi
Oct 27, 2004·The Journal of Nervous and Mental Disease·Ramanathan RaguramMitchell G Weiss
Dec 29, 2004·Lancet Neurology·Pierre-Marie Preux, Michel Druet-Cabanac
Jan 22, 2005·Epilepsia·Gus A BakerUNKNOWN SIGN Group
Feb 22, 2005·Lancet Neurology·Ann JacobyGus A Baker
Mar 31, 2005·Seizure : the Journal of the British Epilepsy Association·Sang-Ahm LeeUNKNOWN Korean QoL in Epilepsy Study Group
Apr 12, 2005·Epilepsy & Behavior : E&B·Abiodun O Adewuya, Bola A Ola
Sep 21, 2005·Epilepsy Research·Laura H GoldsteinJohn D C Mellers
Feb 14, 2006·Lancet·Mitchell G Weiss, Jayashree Ramakrishna
Nov 30, 2006·Psychology, Health & Medicine·Mitchell G WeissDaryl Somma
Dec 15, 2006·Lancet Neurology·Gretchen BirbeckAlan Haworth
Jun 15, 2007·Epilepsia·Sabrina CrepinJean-Claude Desport
May 15, 2008·PLoS Neglected Tropical Diseases·Mitchell G Weiss

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Citations

Oct 18, 2011·Epilepsia·David J ThurmanUNKNOWN ILAE Commission on Epidemiology
Jul 11, 2014·Epilepsy & Behavior : E&B·Emily B LeafferCharles Begley
Feb 7, 2012·Revue neurologique·P-M PreuxM Druet-Cabanac
Apr 13, 2011·Epilepsy & Behavior : E&B·Emily B LeafferDale Hesdorffer
Sep 21, 2010·Epilepsy & Behavior : E&B·Masharip AtadzhanovGretchen Lano Birbeck
Nov 21, 2012·International Journal of Geriatric Psychiatry·Leslie Cartz PiverJean-Pierre Clément
Mar 5, 2013·Epilepsy & Behavior : E&B·Melissa A ElafrosGretchen L Birbeck
Nov 25, 2014·Quality of Life Research : an International Journal of Quality of Life Aspects of Treatment, Care and Rehabilitation·Melissa A ElafrosGretchen L Birbeck
Nov 19, 2013·Seizure : the Journal of the British Epilepsy Association·Ivan BielenAnn Jacoby
Mar 27, 2012·Epilepsy & Behavior : E&B·Morenikeji A KomolafeStephen O Olaniyan
Apr 7, 2012·Epilepsy & Behavior : E&B·Caroline K MbubaJulie A Carter
Apr 1, 2014·Epilepsy & Behavior : E&B·Elisabetta PupilloEttore Beghi
Dec 17, 2014·Epilepsy & Behavior : E&B·E Viteva, M Semerdjieva
Nov 14, 2014·PLoS Neglected Tropical Diseases·Janine de ZeeuwYmkje Stientstra
Jul 28, 2016·Epilepsy & Behavior : E&B·Kubra YeniAysen Gokyigit
Apr 22, 2017·Epilepsy & Behavior : E&B·Ying ShiJiao Sun
Sep 19, 2014·Lancet Neurology·Awa Ba-DiopPierre-Marie Preux
Feb 11, 2012·Current Opinion in Neurology·Michelle P Kvalsund, Gretchen L Birbeck
Sep 18, 2020·PloS One·Fabiane Frota da Rocha MorgadoXimena Illarramendi
Dec 15, 2018·Health & Social Care in the Community·Valerie L ElliotMelanie Bayly
Nov 14, 2014·PLoS Neglected Tropical Diseases·Janine de ZeeuwYmkje Stienstra
Jan 15, 2019·Systematic Reviews·Joseph KirabiraDickens Akena
Sep 3, 2020·Epilepsy Research·Lara MrouehAmal Al-Hajje
Apr 27, 2019·Epilepsy & Behavior : E&B·Athanase MillogoPierre-Marie Preux
Aug 28, 2021·International Journal of Environmental Research and Public Health·Lamia A Al-ZamelYazed AlRuthia

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