Sociodemographic attributes and spina bifida outcomes

Pediatrics
Michael S SchechterJudy K Thibadeau

Abstract

A National Spina Bifida Patient Registry (NSBPR) was begun in 2009 to help understand the natural history of spina bifida (SB) and the effects of treatments provided by SB clinics. We used the NSBPR to explore the relationship of sociodemographic characteristics with SB outcomes. Using NSBPR data collected in 2009 to 2012, we examined the unadjusted association between demographic characteristics and 4 SB outcomes: bowel continence, bladder continence, mobility, and presence of pressure sores. We then developed multivariable logistic models to explore these relationships while controlling for SB clinic, SB type, and level of lesion. Data were available on 2054 patients <22 years of age from 10 SB clinics. In the multivariable models, older age groups were more likely to have continence and pressure sores and less likely to be community ambulatory. Males and patients without private insurance were less likely to be continent and community ambulatory. Non-Hispanic blacks were less likely to be continent. Level of lesion was associated with all outcomes; SB type was associated with all but pressure sores; and all outcomes except community ambulation showed significant variation across clinic sites. Sociodemographic attributes are ...Continue Reading

Citations

Nov 1, 2017·Journal of Pediatric Psychology·Colleen F Bechtel DriscollGrayson N Holmbeck
Nov 11, 2017·Journal of Pediatric Rehabilitation Medicine·Jonathan C RouthJohn S Wiener
Nov 11, 2017·Journal of Pediatric Rehabilitation Medicine·Konrad M SzymanskiRosalia Misseri
Nov 11, 2017·Journal of Pediatric Rehabilitation Medicine·Judy Thibadeau
Nov 11, 2017·Journal of Pediatric Rehabilitation Medicine·John S WienerNational Spina Bifida Patient Registry
Mar 29, 2018·The Journal of Urology·John S WienerUNKNOWN National Spina Bifida Patient Registry
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Nov 21, 2019·Journal of Pediatric Rehabilitation Medicine·Ellen J Fremion, Nienke P Dosa
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Dec 7, 2018·Journal of Pediatric Rehabilitation Medicine·T J AtchleyT S Wilson
Nov 8, 2018·Birth Defects Research·Jonathan CastilloHeidi Castillo
Dec 1, 2020·Journal of Pediatric Rehabilitation Medicine·David B JosephHadley Wood
Dec 17, 2020·Journal of Pediatric Rehabilitation Medicine·Maryellen S KellyGordon Worley
May 4, 2021·Journal of Pediatric Rehabilitation Medicine·Monique M RidoshGrayson N Holmbeck

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