Some methods for blindfolded record linkage

BMC Medical Informatics and Decision Making
Tim Churches, Peter Christen

Abstract

The linkage of records which refer to the same entity in separate data collections is a common requirement in public health and biomedical research. Traditionally, record linkage techniques have required that all the identifying data in which links are sought be revealed to at least one party, often a third party. This necessarily invades personal privacy and requires complete trust in the intentions of that party and their ability to maintain security and confidentiality. Dusserre, Quantin, Bouzelat and colleagues have demonstrated that it is possible to use secure one-way hash transformations to carry out follow-up epidemiological studies without any party having to reveal identifying information about any of the subjects - a technique which we refer to as "blindfolded record linkage". A limitation of their method is that only exact comparisons of values are possible, although phonetic encoding of names and other strings can be used to allow for some types of typographical variation and data errors. A method is described which permits the calculation of a general similarity measure, the n-gram score, without having to reveal the data being compared, albeit at some cost in computation and data communication. This method can be...Continue Reading

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Citations

Feb 3, 2012·Journal of the American Medical Informatics Association : JAMIA·Susan C WeberTodd Ferris
Jul 26, 2013·BMC Medical Informatics and Decision Making·Harald AamotPetra Knaup-Gregori
Aug 27, 2009·BMC Medical Informatics and Decision Making·Rainer SchnellJörg Reiher
Jan 21, 2015·JMIR Medical Informatics·Doyel PalPraveen Khethavath
Aug 1, 2012·Journal of the American Medical Informatics Association : JAMIA·Mehmet KuzuBradley Malin
Dec 12, 2012·Journal of the American Medical Informatics Association : JAMIA·Bradley A MalinChristine M O'Keefe
Apr 11, 2008·International Journal of Telemedicine and Applications·Catherine QuantinOlivier Cohen
Nov 10, 2013·Journal of the American Medical Informatics Association : JAMIA·Hye-Chung KumStanley Ahalt
Dec 23, 2014·IEEE Transactions on Knowledge and Data Engineering·Elizabeth Ashley DurhamBradley Malin
Jan 24, 2009·Revue D'épidémiologie Et De Santé Publique·C QuantinF A Allaert
Jun 25, 2015·Journal of the American Medical Informatics Association : JAMIA·Abel N KhoWilliam L Galanter
Jul 7, 2015·Journal of Biomedical Informatics·Khaled El EmamCraig C Earle
Apr 4, 2017·Anesthesia and Analgesia·Laurent G GlanceRichard P Dutton
Oct 31, 2009·Artificial Intelligence in Medicine·Bradley Malin
Aug 21, 2012·An International Journal on Information Fusion·Elizabeth DurhamBradley Malin

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