Specific unwillingness to donate eyes: the impact of disfigurement, knowledge and procurement on corneal donation

American Journal of Transplantation : Official Journal of the American Society of Transplantation and the American Society of Transplant Surgeons
M LawlorF Billson

Abstract

Although willingness, attitudes and beliefs surrounding solid-organ donation have been extensively investigated, much less is known about corneal donation. Despite evidence that a substantial number of families who agree to multiorgan donation also specifically refuse corneal donation, it is unclear why this occurs and what can be done to increase rates of corneal donation. We conducted a survey of 371 Australian adults regarding their views on corneal donation. Although willingness to donate corneas generally reflected a person's willingness to donate all of one's organs, unwillingness to donate corneas appeared to be due to other factors. Specifically, decisions not to donate appear to be driven by a range of concerns surrounding disfigurement. The survey also provides eye banks with reassurance about the acceptability of whole globe procurement, and recognition that research into blindness is a highly valued part of corneal donation. Finally, the survey identifies that many individuals see benefit in having their family engaged in the decision-making process, suggesting that decisions about donation are more complex than a simple appeal to the autonomy of the deceased.

References

Jun 7, 1985·JAMA : the Journal of the American Medical Association·D L Manninen, R W Evans
Jan 26, 1994·JAMA : the Journal of the American Medical Association·M Sanner
Oct 1, 1995·International Journal of Nursing Studies·B Kent, R G Owens
Nov 1, 1996·Social Science & Medicine·M Sque, S A Payne
Jun 1, 1997·Journal of Transplant Coordination : Official Publication of the North American Transplant Coordinators Organization (NATCO)·M Verble, J Worth
Mar 20, 1998·Journal of Transplant Coordination : Official Publication of the North American Transplant Coordinators Organization (NATCO)·M Verble, J Worth
Aug 15, 2000·Progress in Transplantation : Official Publication, North American Transplant Coordinators Organization ... [et Al.]·M Verble, J Worth
Feb 13, 2001·Clinical Transplantation·L A SiminoffJ Hewlett
Jul 4, 2001·JAMA : the Journal of the American Medical Association·L A SiminoffR M Arnold
Oct 24, 2002·The Journal of Trauma·Laura A Siminoff, Renee H Lawrence
Oct 25, 2002·Graefe's Archive for Clinical and Experimental Ophthalmology = Albrecht Von Graefes Archiv Für Klinische Und Experimentelle Ophthalmologie·Tina R KrieglsteinAljoscha S Neubauer
Oct 10, 2003·Cambridge Quarterly of Healthcare Ethics : CQ : the International Journal of Healthcare Ethics Committees·L A Siminoff, M B Mercer
Sep 29, 2004·Social Science & Medicine·Laura A SiminoffStuart J Youngner
Oct 22, 2004·Kennedy Institute of Ethics Journal·Laura A SiminoffStuart J Youngner
Jun 27, 2006·Investigative Ophthalmology & Visual Science·Christine A Curcio, UNKNOWN Research Tissue Acquisition Working Group

❮ Previous
Next ❯

Citations

Aug 17, 2012·Der Ophthalmologe : Zeitschrift der Deutschen Ophthalmologischen Gesellschaft·C E UhligB Seitz
Oct 21, 2011·Transplantation·Mitchell Lawlor, Ian Kerridge
Mar 8, 2014·BMC Ophthalmology·Venkata Ramana RonankiIsabelle Jalbert
Dec 24, 2013·Journal of Bioethical Inquiry·Mitchell Lawlor, Ian Kerridge
Sep 23, 2014·Graefe's Archive for Clinical and Experimental Ophthalmology = Albrecht Von Graefes Archiv Für Klinische Und Experimentelle Ophthalmologie·C E UhligD Böhringer
Jun 19, 2013·Current Eye Research·Andrew M WilliamsKelly W Muir
Mar 13, 2015·American Journal of Transplantation : Official Journal of the American Society of Transplantation and the American Society of Transplant Surgeons·M-C ZhangH-T Xie
Aug 19, 2014·Transplantation Proceedings·K C HermannM L B de Oliveira
Jul 6, 2016·Eye and Vision·Carisa Mariella Alvarez ParazSelina Md Kassim
Feb 15, 2017·Ophthalmic Surgery, Lasers & Imaging Retina·Jerome V GiovinazzoPaul T Finger
Apr 12, 2012·Progress in Transplantation : Official Publication, North American Transplant Coordinators Organization ... [et Al.]·Margaret Verble, Judy Worth
Mar 2, 2013·Progress in Transplantation : Official Publication, North American Transplant Coordinators Organization ... [et Al.]·Margaret VerbleJudy Worth
Jan 3, 2019·PloS One·Catrin Pedder JonesGurch Randhawa
Sep 27, 2018·Experimental and Clinical Transplantation : Official Journal of the Middle East Society for Organ Transplantation·Sheshadri Vishnu MahajanParupalli Karunakar
Mar 27, 2013·Chinese Medical Sciences Journal = Chung-kuo I Hsüeh K'o Hsüeh Tsa Chih·Ting ChuRu-yang Zhang
Nov 27, 2019·International Ophthalmology·Abhishek DaveSaurabh Biswas
Mar 17, 2020·Clinical & Experimental Ophthalmology·Gerard SuttonChris Hodge
Aug 7, 2019·Saudi Journal of Ophthalmology : Official Journal of the Saudi Ophthalmological Society·Latifa F AlanaziAbdullah M Alfawaz
Oct 4, 2017·BMC Ophthalmology·Mohammed Seid HussenNebiyat Feleke Adimassu
Sep 1, 2017·Scientific Reports·Yongliang LinYifei Wang
May 3, 2021·International Journal of Medical Informatics·Waraporn ChumkasianHeidi Lord
May 28, 2021·Postgraduate Medical Journal·Bhavesh P GopalDarren S J Ting
Jun 15, 2021·Canadian Journal of Ophthalmology. Journal Canadien D'ophtalmologie·Ali SalimiMona Harissi-Dagher
Dec 15, 2020·Ophthalmologica. Journal international d'ophtalmologie. International journal of ophthalmology. Zeitschrift für Augenheilkunde·Muriel B HussMaximilian Pfau

❮ Previous
Next ❯

Related Concepts

Trending Feeds

COVID-19

Coronaviruses encompass a large family of viruses that cause the common cold as well as more serious diseases, such as the ongoing outbreak of coronavirus disease 2019 (COVID-19; formally known as 2019-nCoV). Coronaviruses can spread from animals to humans; symptoms include fever, cough, shortness of breath, and breathing difficulties; in more severe cases, infection can lead to death. This feed covers recent research on COVID-19.

Blastomycosis

Blastomycosis fungal infections spread through inhaling Blastomyces dermatitidis spores. Discover the latest research on blastomycosis fungal infections here.

Nuclear Pore Complex in ALS/FTD

Alterations in nucleocytoplasmic transport, controlled by the nuclear pore complex, may be involved in the pathomechanism underlying multiple neurodegenerative diseases including Amyotrophic Lateral Sclerosis and Frontotemporal Dementia. Here is the latest research on the nuclear pore complex in ALS and FTD.

Applications of Molecular Barcoding

The concept of molecular barcoding is that each original DNA or RNA molecule is attached to a unique sequence barcode. Sequence reads having different barcodes represent different original molecules, while sequence reads having the same barcode are results of PCR duplication from one original molecule. Discover the latest research on molecular barcoding here.

Chronic Fatigue Syndrome

Chronic fatigue syndrome is a disease characterized by unexplained disabling fatigue; the pathology of which is incompletely understood. Discover the latest research on chronic fatigue syndrome here.

Evolution of Pluripotency

Pluripotency refers to the ability of a cell to develop into three primary germ cell layers of the embryo. This feed focuses on the mechanisms that underlie the evolution of pluripotency. Here is the latest research.

Position Effect Variegation

Position Effect Variagation occurs when a gene is inactivated due to its positioning near heterochromatic regions within a chromosome. Discover the latest research on Position Effect Variagation here.

STING Receptor Agonists

Stimulator of IFN genes (STING) are a group of transmembrane proteins that are involved in the induction of type I interferon that is important in the innate immune response. The stimulation of STING has been an active area of research in the treatment of cancer and infectious diseases. Here is the latest research on STING receptor agonists.

Microbicide

Microbicides are products that can be applied to vaginal or rectal mucosal surfaces with the goal of preventing, or at least significantly reducing, the transmission of sexually transmitted infections. Here is the latest research on microbicides.