Spina bifida and mobility in the transition years

American Journal of Physical Medicine & Rehabilitation
Brad E DiciannoAndrew T Zabel

Abstract

Adolescents with spina bifida experience decreased mobility (Johnson KL, Dudgeon B, Kuehn C, et al: Am J Public Health 2007;97:330-6), especially during the time of transition from pediatric to adult care, but little research has been done on the relationships between mobility and self-management skills, psychological health, or quality of life. In this multicenter, interdisciplinary study, a convenience sample of 61 participants with spina bifida from regional spina bifida clinics (mean age = 21.0 +/- 2.1 yrs) participated in a structured clinical interview on self-management and completed standardized self-report measures of psychological distress, quality of life, and mobility status. Participants were divided into three mobility groups: ambulators, part-time wheelchair users, and full-time wheelchair users and were compared with respect to outcome measures. We found that full-time wheelchair use is associated with reduced quality of life but that psychological distress and problems with self-management are prevalent, regardless of mobility status. Research should be aimed at assessing life satisfaction as it relates to assistive technology use to delineate further how technological advancements in wheelchair design and univ...Continue Reading

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Oct 17, 2008·American Journal of Physical Medicine & Rehabilitation·Brad E DiciannoJennifer Sotirake
Jun 23, 2009·American Journal of Physical Medicine & Rehabilitation·Brad E DiciannoShannon Lee

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Citations

Jul 23, 2013·American Journal of Physical Medicine & Rehabilitation·Melissa H BellinT Andrew Zabel
Dec 7, 2014·Physical Medicine and Rehabilitation Clinics of North America·Joan T Le, Shubhra Mukherjee
Apr 16, 2011·Disability and Rehabilitation·Carolyn WestKatharine Steinbeck
Oct 5, 2010·Pediatric Clinics of North America·Kathleen J SawinRonna Linroth
Mar 18, 2011·Developmental Medicine and Child Neurology·Melissa H BellinT Andrew Zabel
Apr 27, 2010·Developmental Disabilities Research Reviews·Kathleen J Sawin, Melissa H Bellin
Dec 31, 2015·Childhood Obesity·Amy C McPhersonUNKNOWN DOCC-Net (Disability and Obesity in Canadian Children Network)
Nov 11, 2017·Journal of Pediatric Rehabilitation Medicine·Ellen FremionKathryn Ostermaier
Feb 7, 2018·PM & R : the Journal of Injury, Function, and Rehabilitation·Theresa M CrytzerBrad E Dicianno
Mar 27, 2020·American Journal of Physical Medicine & Rehabilitation·W Austin DavisBrad E Dicianno
Dec 7, 2018·Journal of Pediatric Rehabilitation Medicine·Betsy HopsonJeffrey P Blount
Dec 7, 2018·Journal of Pediatric Rehabilitation Medicine·Kathleen J SawinTimothy J Brei
Dec 1, 2020·Journal of Pediatric Rehabilitation Medicine·Lynne Romeiser LoganJason Woodward
Dec 17, 2020·Journal of Pediatric Rehabilitation Medicine·Kathleen J SawinAmy J Houtrow
Dec 17, 2020·Journal of Pediatric Rehabilitation Medicine·Pamela E Wilson, Shubhra Mukherjee

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