SpineData - a Danish clinical registry of people with chronic back pain

Clinical Epidemiology
Peter KentClaus Manniche

Abstract

Large-scale clinical registries are increasingly recognized as important resources for quality assurance and research to inform clinical decision-making and health policy. We established a clinical registry (SpineData) in a conservative care setting where more than 10,000 new cases of spinal pain are assessed each year. This paper describes the SpineData registry, summarizes the characteristics of its clinical population and data, and signals the availability of these data as a resource for collaborative research projects. The SpineData registry is an Internet-based system that captures patient data electronically at the point of clinical contact. The setting is the government-funded Medical Department of the Spine Centre of Southern Denmark, Hospital Lillebaelt, where patients receive a multidisciplinary assessment of their chronic spinal pain. Started in 2011, the database by early 2015 contained information on more than 36,300 baseline episodes of patient care, plus the available 6-month and 12-month follow-up data for these episodes. The baseline questionnaire completion rate has been 93%; 79% of people were presenting with low back pain as their main complaint, 6% with mid-back pain, and 15% with neck pain. Collectively, a...Continue Reading

Citations

Oct 19, 2016·Current Medical Research and Opinion·Coen ItzMaarten van Kleef
Sep 7, 2016·The Journal of Orthopaedic and Sports Physical Therapy·Ricci AnsteyMark J Hancock
Oct 13, 2019·Scandinavian Journal of Pain·Søren O'NeillPeter Kent
Mar 30, 2020·Pain Medicine : the Official Journal of the American Academy of Pain Medicine·Kasper UssingPeter Bruce O'Sullivan
Sep 10, 2020·Clinical Epidemiology·Rikke Krüger JensenWerner Vach
Feb 20, 2020·Pain Reports·Gabrielle M PagéLaura S Stone
Aug 21, 2020·The Clinical Journal of Pain·Kasper S ChristensenThorvaldur S Palsson
Apr 25, 2021·European Spine Journal : Official Publication of the European Spine Society, the European Spinal Deformity Society, and the European Section of the Cervical Spine Research Society·Claus MannicheSøren G Skousgaard
May 28, 2021·Scandinavian Journal of Pain·Søren O'NeillCasper Glissmann Nim
Jun 23, 2021·Clinical Biomechanics·Steen HarstedCasper Glissmann Nim

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Software Mentioned

Utility Creative
Apache Tomcat
MSQL
Java
JQuery
STarT Back Tool
SpineData
STATA

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