Spirituality and Religiosity in Adolescents Living With Sickle Cell Disease

Western Journal of Nursing Research
Dora Clayton-JonesAlexis A Thompson

Abstract

This study purports to address paucity in the literature regarding how adolescents with sickle cell disease (SCD) describe and experience spirituality and religiosity (S/R). This was a qualitative descriptive study. Two semi-structured interviews were conducted with nine adolescents (Mage = 16.2 years). Data were analyzed using a template analysis style and a concurrent analysis process of data reduction. Three major themes encompassed the participants' descriptions of the relationships between S/R, health and illness in their lives including S/R as sources for coping, influence of S/R beliefs on health and illness, and sharing S/R with Health Care Providers (HCPs). S/R as coping mechanisms included six threads: interconnecting with God, interconnecting with others, interconnecting with creative arts, scriptural metanarratives, transcendent experiences, and acceptance and finding meaning. Expectations of health providers included two threads: Religiosity is private/personal and sharing spiritual and religious beliefs is risky. S/R are particularly salient for adolescents with SCD.

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Citations

Jun 18, 2019·Journal of Research on Adolescence : the Official Journal of the Society for Research on Adolescence·Sam A HardyPamela Ebstyne King
Jan 1, 2020·Journal of Transcultural Nursing : Official Journal of the Transcultural Nursing Society·Dora Clayton-JonesKristin Haglund
Sep 24, 2020·Revista brasileira de enfermagem·Elaine Cristina Rodrigues GesteiraEdilene Aparecida Araújo Silveira
Apr 19, 2018·Journal of Religion and Health·Masoume RambodKate Khair
Jan 3, 2019·Journal of Religion and Health·Dora Clayton-JonesSafiya George Dalmida
May 25, 2020·Journal of Religion and Health·Delores P Quasie-WoodeTilicia L Mayo-Gamble
Mar 3, 2021·Journal of Pediatric Nursing·Willyane de Andrade AlvarengaLucila Castanheira Nascimento
Dec 17, 2021·Pediatric Blood & Cancer·Csaba SzilagyiChristina M Puchalski

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