Staff members and managers' views of the conditions for the participation of adults with profound intellectual and multiple disabilities

Journal of Applied Research in Intellectual Disabilities : JARID
Lena TalmanChristine Gustafsson

Abstract

Participation is a central aspect of quality of life, and it is indicative of high-quality outcomes for people with intellectual disabilities. However, participation is difficult to achieve for adults with profound intellectual and multiple disabilities. To describe staff members' perceptions of what participation means for adults with profound intellectual and multiple disabilities. Using a phenomenographic approach, 27 interviews were analysed resulting in variations in the conditions for participation. The interviews revealed conditions for participation at individual, staff and organisational levels. Participation appears to be an un-reflected phenomenon, and several conditions must be met to achieve it. The conditions are experienced being fundamental for adults within the target group to achieve any kind of participation. The staff members and managers' perceptions of participation as conditional can make it more difficult for adults within the target group to achieve the Swedish disability policy goal of participation.

References

Jan 1, 1995·Research in Developmental Disabilities·D Felce, J Perry
Oct 18, 2002·Journal of Advanced Nursing·Björn Sjöström, Lars Owe Dahlgren
Jun 24, 2008·Journal of Intellectual & Developmental Disability·Sheridan Forster, Teresa Iacono
Oct 17, 2008·Disability and Rehabilitation·Joy HammelEvelyn Rodriguez
Apr 21, 2009·American Journal on Intellectual and Developmental Disabilities·Agnes KozmaJulie Beadle-Brown
Jun 20, 2012·Journal of Applied Research in Intellectual Disabilities : JARID·Hilary JohnsonTeresa Iacono
Dec 22, 2012·Intellectual and Developmental Disabilities·Christine BigbyJim Mansell
Jun 14, 2014·International Journal of Language & Communication Disorders·Juliet GoldbartSusan Buell
Oct 2, 2014·Journal of Applied Research in Intellectual Disabilities : JARID·Christine BigbyTim Clement
May 23, 2015·Journal of Applied Research in Intellectual Disabilities : JARID·J Beadle-BrownJ Bradshaw

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Citations

Dec 19, 2020·Journal of Applied Research in Intellectual Disabilities : JARID·Darren McCauslandMary McCarron

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