Stakeholder-Engaged Derivation of Patient-Informed Value Elements.

The Patient
Susan dosReisJulia F Slejko

Abstract

Our objective was to identify patient-informed value elements that can be used to make value assessment more patient centered. Mixed methods were used iteratively to collect and integrate qualitative and quantitative data in a four-stage process: identification (stage 1), prioritization (stage 2), refinement (stage 3), and synthesis (stage 4). Qualitative methods involved one-on-one discussions with 14 patient stakeholders from diverse medical communities representing mental health, osteoporosis, blindness, lupus, eczema, oncology, chronic obstructive pulmonary disease, and hypercholesterolemia. Stakeholders completed guided activities to prioritize elements important to patient healthcare decision making. Responses were summarized descriptively as frequencies and proportions. Stakeholders identified 94 value elements in stage 1. Of these, 42 elements remained following the stage 2 prioritization and the stage 3 refinement. During the stage 4 synthesis, the 42 patient-informed value elements comprised the principal set of value elements that were organized by 11 categories: tolerability, disease burden, forecasting, accessibility of care/treatment, healthcare service delivery, cost incurred on the patient, cost incurred on the ...Continue Reading

References

Oct 8, 2016·Value in Health : the Journal of the International Society for Pharmacoeconomics and Outcomes Research·Axel C MühlbacherSarah Garner
Dec 20, 2016·Journal of Child and Adolescent Psychopharmacology·Susan dosReisJohn F P Bridges
Feb 27, 2017·Value in Health : the Journal of the International Society for Pharmacoeconomics and Outcomes Research·Louis P GarrisonAdrian Towse
Feb 27, 2017·Value in Health : the Journal of the International Society for Pharmacoeconomics and Outcomes Research·Axel C Mühlbacher, Andrew Sadler
Feb 27, 2017·Value in Health : the Journal of the International Society for Pharmacoeconomics and Outcomes Research·Jeff D AllenEllen V Sigal
Feb 27, 2017·Value in Health : the Journal of the International Society for Pharmacoeconomics and Outcomes Research·Eleanor M PerfettoEric Gascho
Feb 27, 2017·Value in Health : the Journal of the International Society for Pharmacoeconomics and Outcomes Research·Melissa J Armstrong, C Daniel Mullins
Feb 27, 2017·Value in Health : the Journal of the International Society for Pharmacoeconomics and Outcomes Research·Corinna SorensonMark McClellan
Feb 27, 2018·Value in Health : the Journal of the International Society for Pharmacoeconomics and Outcomes Research·Richard NormanAnthony J Culyer
Feb 27, 2018·Value in Health : the Journal of the International Society for Pharmacoeconomics and Outcomes Research·Peter J NeumannLouis P Garrison
Feb 27, 2018·Value in Health : the Journal of the International Society for Pharmacoeconomics and Outcomes Research·Louis P GarrisonPeter J Neumann
Feb 27, 2018·Value in Health : the Journal of the International Society for Pharmacoeconomics and Outcomes Research·Darius N LakdawallaPatricia M Danzon
Feb 27, 2018·Value in Health : the Journal of the International Society for Pharmacoeconomics and Outcomes Research·Charles E PhelpsPatricia M Danzon
Feb 27, 2018·Value in Health : the Journal of the International Society for Pharmacoeconomics and Outcomes Research·Louis P GarrisonMilton C Weinstein
Sep 6, 2018·PharmacoEconomics Open·Vakaramoko DiabyAlberto J Montero
May 21, 2019·Value in Health : the Journal of the International Society for Pharmacoeconomics and Outcomes Research·Julia F SlejkoSusan dosReis
Dec 4, 2019·PharmacoEconomics·T Joseph MattinglyC Daniel Mullins
Jan 17, 2020·The Patient·Jacoline C BouvyNick Crabb

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