Stakeholder Engagement in a Patient-Reported Outcomes (PRO) Measure Implementation: A Report from the SAFTINet Practice-based Research Network (PBRN)

Journal of the American Board of Family Medicine : JABFM
Bethany M KwanLisa M Schilling

Abstract

Patient-reported outcome (PRO) measures offer value for clinicians and researchers, although priorities and value propositions can conflict. PRO implementation in clinical practice may benefit from stakeholder engagement methods to align research and clinical practice stakeholder perspectives. The objective is to demonstrate the use of stakeholder engagement in PRO implementation. Engaged stakeholders represented researchers and clinical practice representatives from the SAFTINet practice-based research network (PBRN). A stakeholder engagement process involving iterative analysis, deliberation, and decision making guided implementation of a medication adherence PRO measure (the Medication Adherence Survey [MAS]) for patients with hypertension and/or hyperlipidemia. Over 9 months, 40 of 45 practices (89%) implemented the MAS, collecting 3,247 surveys (mean = 72, median = 30, range: 0 - 416). Facilitators included: an electronic health record (EHR) with readily modifiable templates; existing staff, tools and workflows in which the MAS could be integrated (e.g., health risk appraisals, hypertension-specific visits, care coordinators); and engaged leadership and quality improvement teams. Stakeholder engagement appeared useful for ...Continue Reading

Citations

Nov 23, 2019·International Journal of Audiology·Lisette M van LeeuwenSophia E Kramer
Sep 15, 2017·BMC Medical Informatics and Decision Making·Toan C OngLisa M Schilling
Oct 14, 2017·Quality of Life Research : an International Journal of Quality of Life Aspects of Treatment, Care and Rehabilitation·Isabelle ToupinBertrand Lebouché
Aug 30, 2019·BMC Health Services Research·James O E PittmanLaurie Lindamer
May 31, 2017·Clinical and Translational Science·D J BowenJ-H Yu
Sep 15, 2020·Journal of the American Heart Association·Rohan KheraKhurram Nasir
Aug 28, 2021·International Forum of Allergy & Rhinology·David T LiuAhmad R Sedaghat

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