Stigma Associated with Classical Congenital Adrenal Hyperplasia in Women's Sexual Lives

Archives of Sexual Behavior
Heino F L Meyer-BahlburgM I New

Abstract

The risk of intersex-related stigma often serves as social indication for "corrective" genital surgery, but has not been comprehensively documented. In preparation for the development of an intersex-specific stigma assessment tool, this qualitative project aimed to explore stigma in girls and women with classical congenital adrenal hyperplasia (CAH) due to 21-hydroxylase deficiency. As part of a comprehensive follow-up project, 62 adult women with classical CAH (age range 18-51 years) took part in an open-ended retrospective interview focusing on the impact of CAH and its treatment on various aspects of girls' and women's lives. Deductive qualitative content analysis (Patton, 2014) of de-identified transcripts involved categorization of three types of stigma: experienced, anticipated, and internalized. Two-fifths of the participants reported CAH-related stigma in romantic/sexual situations. Stigma enactment by romantic partners occurred in reaction to both genital and non-genital sex-atypical features of CAH and sometimes included explicit questioning of the women's true gender. Stigma anticipation by the women and their related avoidance of nudity, genital exposure, and romantic involvement altogether were frequent. Internaliz...Continue Reading

References

Jul 2, 1999·Cambridge Quarterly of Healthcare Ethics : CQ : the International Journal of Healthcare Ethics Committees·A Goldworth
Feb 11, 2003·Advances in Experimental Medicine and Biology·Heino F L Meyer-Bahlburg
Feb 16, 2005·Annual Review of Psychology·Brenda Major, Laurie T O'Brien
Apr 21, 2006·Archives of Disease in Childhood·I A HughesUNKNOWN ESPE Consensus Group
Aug 12, 2006·Archives of Sexual Behavior·Heino F L Meyer-BahlburgMaria I New
Jul 2, 2009·The Journal of Clinical Endocrinology and Metabolism·Louise FrisénAgneta Nordenskjöld
Sep 8, 2010·The American Journal of Bioethics : AJOB·Alice DregerHilde Lindemann
Sep 9, 2010·The Journal of Clinical Endocrinology and Metabolism·Phyllis W SpeiserUNKNOWN Endocrine Society
Jul 30, 2011·Journal of Health Psychology·Valerie A Earnshaw, Diane M Quinn
Apr 25, 2012·Journal of Behavioral Medicine·Valerie A EarnshawCrystal L Park
Mar 16, 2013·American Journal of Public Health·Mark L HatzenbuehlerBruce G Link
Feb 18, 2014·Journal of Pediatric Urology·Milton Diamond, Jameson Garland
Feb 18, 2014·Journal of Pediatric Urology·Peter A Lee, Christopher P Houk
Jun 12, 2014·Journal of Pediatric Urology·J D FrankP Malone
Feb 6, 2015·Hormone and Metabolic Research = Hormon- Und Stoffwechselforschung = Hormones Et Métabolisme·A B Wisniewski, D E Sandberg
Apr 29, 2015·International Journal of Endocrinology·Aimee M RolstonDavid E Sandberg
Jun 13, 2015·Journal of Pediatric Endocrinology & Metabolism : JPEM·Mailme de Souza OliveiraAndréa Trevas Maciel-Guerra
Aug 25, 2015·Narrative Inquiry in Bioethics·Georgiann Davis
May 24, 2016·European Urology·Martine CoolsUNKNOWN Management Committee of the European Cooperation in Science and Technology Action BM1303
Sep 2, 2016·Current Opinion in Urology·Amy B Wisniewski
Feb 6, 2017·International Journal of Pediatric Endocrinology·Pierre BougnèresLina Michala

❮ Previous
Next ❯

Citations

May 15, 2018·Transgender Health·William ByneJack Pula
Oct 3, 2018·The Journal of Clinical Endocrinology and Metabolism·Jehad AlmasriM Hassan Murad
Sep 24, 2020·The New England Journal of Medicine·Deborah P Merke, Richard J Auchus
Apr 2, 2020·Frontiers in Behavioral Neuroscience·Elisabeth DaaeHenrik Falhammar
Jun 4, 2020·International Journal of Environmental Research and Public Health·Grzegorz KudelaTomasz Koszutski
Dec 22, 2020·Focus : Journal of Life Long Learning in Psychiatry·William ByneJack Pula
May 8, 2021·Endocrine Reviews·Hedi L Claahsen-van der GrintenPerrin C White
Jan 4, 2022·Der Internist·Lea TschaidseNicole Reisch

❮ Previous
Next ❯

Related Concepts

Trending Feeds

COVID-19

Coronaviruses encompass a large family of viruses that cause the common cold as well as more serious diseases, such as the ongoing outbreak of coronavirus disease 2019 (COVID-19; formally known as 2019-nCoV). Coronaviruses can spread from animals to humans; symptoms include fever, cough, shortness of breath, and breathing difficulties; in more severe cases, infection can lead to death. This feed covers recent research on COVID-19.

Blastomycosis

Blastomycosis fungal infections spread through inhaling Blastomyces dermatitidis spores. Discover the latest research on blastomycosis fungal infections here.

Nuclear Pore Complex in ALS/FTD

Alterations in nucleocytoplasmic transport, controlled by the nuclear pore complex, may be involved in the pathomechanism underlying multiple neurodegenerative diseases including Amyotrophic Lateral Sclerosis and Frontotemporal Dementia. Here is the latest research on the nuclear pore complex in ALS and FTD.

Applications of Molecular Barcoding

The concept of molecular barcoding is that each original DNA or RNA molecule is attached to a unique sequence barcode. Sequence reads having different barcodes represent different original molecules, while sequence reads having the same barcode are results of PCR duplication from one original molecule. Discover the latest research on molecular barcoding here.

Chronic Fatigue Syndrome

Chronic fatigue syndrome is a disease characterized by unexplained disabling fatigue; the pathology of which is incompletely understood. Discover the latest research on chronic fatigue syndrome here.

Evolution of Pluripotency

Pluripotency refers to the ability of a cell to develop into three primary germ cell layers of the embryo. This feed focuses on the mechanisms that underlie the evolution of pluripotency. Here is the latest research.

Position Effect Variegation

Position Effect Variagation occurs when a gene is inactivated due to its positioning near heterochromatic regions within a chromosome. Discover the latest research on Position Effect Variagation here.

STING Receptor Agonists

Stimulator of IFN genes (STING) are a group of transmembrane proteins that are involved in the induction of type I interferon that is important in the innate immune response. The stimulation of STING has been an active area of research in the treatment of cancer and infectious diseases. Here is the latest research on STING receptor agonists.

Microbicide

Microbicides are products that can be applied to vaginal or rectal mucosal surfaces with the goal of preventing, or at least significantly reducing, the transmission of sexually transmitted infections. Here is the latest research on microbicides.