Strategies for recruitment and retention of underrepresented populations with chronic obstructive pulmonary disease for a clinical trial

BMC Medical Research Methodology
Beatrice HuangDavid H Thom

Abstract

Recruitment and retention are two significant barriers in research, particularly for historically underrepresented groups, including racial and ethnic minorities, patients who are low-income, or people with substance use or mental health issues. Chronic obstructive pulmonary disease (COPD) is the third leading cause of death and disproportionately affects many underrepresented groups. The lack of representation of these groups in research limits the generalizability and applicability of clinical research and results. In this paper we describe our experience and rates of recruitment and retention of underrepresented groups for the Aides in Respiration (AIR) COPD Health Coaching Study. A priori design strategies included minimizing exclusion criteria, including patients in the study process, establishing partnerships with the community clinics, and ensuring that the health coaching intervention was flexible enough to accommodate patient needs. Challenges to recruitment included lack of spirometric data in patient records, space constraints at the clinic sites, barriers to patient access to clinic sites, lack of current patient contact information and poor patient health. Of 282 patients identified as eligible, 192 (68%) were enro...Continue Reading

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Oct 10, 2020·Journal of Immigrant and Minority Health·Rita V MaseseUNKNOWN SCD Implementation Consortium
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Clinical Trials Mentioned

NCT02234284

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