Successful strategies for increasing African American participation in cancer genetic studies: hopeful signs for equalizing the benefits of genetic medicine

Community Genetics
Annette R PattersonGail E Tomlinson

Abstract

To determine whether prior success in recruiting African Americans to an in-house cancer genetics registry could be duplicated when recruiting to a national registry requiring a significantly increased level of commitment. Additionally, to determine which recruitment sources and practices yielded the highest number of African American participants. A retrospective analysis of recruitment sources, practices, and results for recruitment to the Cancer Genetics Network (CGN; a national research registry), from 2000 to 2005 was conducted. These results were compared to previous experience in recruiting African Americans to the Family Cancer Registry (FCR; an in-house registry) during the period 1992-2005. In the 1st year of recruitment to the CGN, African Americans accounted for 24% of those consenting to participate in the CGN registry from our center. This compares to an average annual rate of 27% for the FCR during the years 1998-2005, and a rate of less than 1% from 1992 to 1998. By 2005, African Americans accounted for 27% of CGN participants recruited through the University of Texas Southwestern Medical Center, one of eighteen participating institutions in the CGN. Hospital-based resources such as cancer treatment clinics and ...Continue Reading

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Citations

Aug 9, 2011·Journal of Genetic Counseling·Kristi D GravesVanessa B Sheppard
Jul 9, 2010·Genetics in Medicine : Official Journal of the American College of Medical Genetics·Della Brown WhiteColleen M McBride
Feb 5, 2013·Journal of Health Care for the Poor and Underserved·Dorothy F EdwardsChelsea S Kidwell
Jun 21, 2014·Journal of Community Genetics·Carla L StorrNicholas Ialongo
Oct 11, 2014·Journal of Cancer Education : the Official Journal of the American Association for Cancer Education·Inez AdamsVanessa B Sheppard

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