Abstract
To determine whether prior success in recruiting African Americans to an in-house cancer genetics registry could be duplicated when recruiting to a national registry requiring a significantly increased level of commitment. Additionally, to determine which recruitment sources and practices yielded the highest number of African American participants. A retrospective analysis of recruitment sources, practices, and results for recruitment to the Cancer Genetics Network (CGN; a national research registry), from 2000 to 2005 was conducted. These results were compared to previous experience in recruiting African Americans to the Family Cancer Registry (FCR; an in-house registry) during the period 1992-2005. In the 1st year of recruitment to the CGN, African Americans accounted for 24% of those consenting to participate in the CGN registry from our center. This compares to an average annual rate of 27% for the FCR during the years 1998-2005, and a rate of less than 1% from 1992 to 1998. By 2005, African Americans accounted for 27% of CGN participants recruited through the University of Texas Southwestern Medical Center, one of eighteen participating institutions in the CGN. Hospital-based resources such as cancer treatment clinics and ...Continue Reading
References
Dec 6, 1995·Journal of the National Cancer Institute·G M Swanson, A J Ward
Nov 14, 1997·Patient Education and Counseling·C HughesC Lerman
Nov 21, 1997·American Journal of Public Health·V N Gamble
Jan 24, 1998·American Journal of Medical Genetics·J L BenkendorfC Lerman
Aug 26, 1998·Annals of Behavioral Medicine : a Publication of the Society of Behavioral Medicine·R E LeeS A Hickmann
Dec 5, 1998·Annals of Internal Medicine·S SyngalK M Kuntz
Apr 7, 1999·Annals of Epidemiology·P G MoormanD P Sandler
Aug 7, 1999·Oncology·M MartyF Lerebours
Sep 2, 1999·Journal of the National Cancer Institute·K J Helzlsouer
Jan 6, 2000·Social Science & Medicine·M Abrums
Apr 5, 2000·Journal of Behavioral Medicine·K A Donovan, D C Tucker
Aug 25, 2000·Journal of Women's Health & Gender-based Medicine·B A BrownN Milliken
Feb 24, 2001·Annals of Epidemiology·M N FouadS Churchill
Feb 24, 2001·Annals of Epidemiology·C RoyalF Collins
Nov 22, 2001·Preventive Medicine·A Y KinneyS L Neuhausen
May 25, 2002·The New England Journal of Medicine·Noah D KauffKenneth Offit
May 25, 2002·The New England Journal of Medicine·Timothy R RebbeckUNKNOWN Prevention and Observation of Surgical End Points Study Group
Oct 24, 2003·Patient Education and Counseling·Chanita HughesClinton Finch
Jan 14, 2005·The Breast Journal·Annette PattersonGail Tomlinson
Jul 30, 2005·Journal of Clinical Oncology : Official Journal of the American Society of Clinical Oncology·Worta McCaskill-StevensLori M Minasian
Citations
Nov 26, 2009·Journal of Autism and Developmental Disorders·Claudia L HiltonJohn N Constantino
Aug 9, 2011·Journal of Genetic Counseling·Kristi D GravesVanessa B Sheppard
May 18, 2011·Journal of Community Genetics·Ida J Spruill
Jul 9, 2010·Genetics in Medicine : Official Journal of the American College of Medical Genetics·Della Brown WhiteColleen M McBride
Nov 26, 2010·Human Genomics·Herbert PangTiejun Tong
Jul 5, 2011·Genome Medicine·Gert Helgesson
Feb 5, 2013·Journal of Health Care for the Poor and Underserved·Dorothy F EdwardsChelsea S Kidwell
Jun 21, 2014·Journal of Community Genetics·Carla L StorrNicholas Ialongo
Mar 18, 2016·Journal of the American Medical Informatics Association : JAMIA·Timothy DyeJack Chang
Oct 11, 2014·Journal of Cancer Education : the Official Journal of the American Association for Cancer Education·Inez AdamsVanessa B Sheppard
Jul 15, 2017·BMC Medical Research Methodology·Rebecca SaloweJoan O'Brien