Support after brain tumor means different things: family caregivers' experiences of support and relationship changes

Frontiers in Oncology
Tamara OwnsworthSuzanne Chambers

Abstract

Shorter hospital stays and greater emphasis on outpatient care means that family members have the primary responsibility for supporting a person with brain tumor to manage the physical, cognitive, behavioral, and emotional effects of the illness and its treatment. Given the integral role of family caregivers, it is essential to understand their experience of the impact of brain tumor and their own support needs. Accordingly, this qualitative study aimed to investigate family caregivers' experiences of support and relationship changes in the context of brain tumor. In-depth interviews were conducted with 11 family caregivers (8 spouse/partner, 3 parents) of people with malignant or benign tumor. A thematic analysis of interview transcripts identified two major themes, namely, "Meanings of Support" and "Relationship Impacts." The Meanings of Support theme was characterized by intertwined and distinct support needs, varied expectations of support and factors influencing support expectations. The Relationship Impacts theme depicted mixed experiences of strengthened, maintained, and strained relations with the person with brain tumor. Overall, the findings highlight that there is considerable variability in caregivers' experiences a...Continue Reading

References

May 1, 1983·Journal of Gerontology·B C Robinson
Oct 29, 1998·The Journal of Neuroscience Nursing : Journal of the American Association of Neuroscience Nurses·S Fox, C Lantz
Oct 26, 1999·The British Journal of Clinical Psychology·R ElliottD L Rennie
Feb 28, 2001·Palliative Medicine·S Adelbratt, P Strang
Jan 5, 2002·Supportive Care in Cancer : Official Journal of the Multinational Association of Supportive Care in Cancer·S StrangB M Ternestedt
Jun 1, 2002·Cancer Nursing·Ann-Kristin WideheimGerd Ahlström
Jul 23, 2002·Palliative Medicine·Pär Salander, Agneta Spetz
Mar 25, 2004·International Journal of Palliative Nursing·Paula R SherwoodCharles W Given
May 20, 2006·Supportive Care in Cancer : Official Journal of the Multinational Association of Supportive Care in Cancer·Monika JandaKate Troy
Jun 16, 2006·Supportive Care in Cancer : Official Journal of the Multinational Association of Supportive Care in Cancer·Stephen T KeirHenry S Friedman
Oct 18, 2006·Supportive Care in Cancer : Official Journal of the Multinational Association of Supportive Care in Cancer·K HodgkinsonG Wain
Sep 13, 2007·Canadian Oncology Nursing Journal = Revue Canadienne De Nursing Oncologique·Rosemary CashmanJames Perry
Oct 25, 2007·Psycho-oncology·Tanja Edvardsson, Gerd Ahlström
Nov 13, 2007·Neuro-oncology·Jane R SchubartElana Farace
Mar 11, 2008·Patient Education and Counseling·Monika JandaElizabeth Eakin
May 17, 2008·The Journal of Neuroscience Nursing : Journal of the American Association of Neuroscience Nurses·Carol SchmerMichael Salacz
Aug 9, 2008·BMJ : British Medical Journal·Ayelet KuperWendy Levinson
Sep 30, 2008·American Journal of Medical Quality : the Official Journal of the American College of Medical Quality·Dave S Collingridge, Edwin E Gantt
Dec 17, 2009·Psycho-oncology·Una StenbergChristine Miaskowski
Feb 4, 2010·Palliative Medicine·Ruth McConigleyAnna Nowak
May 19, 2010·European Journal of Cancer Care·K Madsen, H S Poulsen
Dec 15, 2010·Neuropsychological Rehabilitation·Tamara OwnsworthDavid Shum
Aug 31, 2011·Oncology Nursing Forum·Meagan Whisenant
Oct 5, 2011·Journal of Neuro-oncology·Claudia Yvonne FinocchiaroAndrea Salmaggi
Jan 31, 2012·Supportive Care in Cancer : Official Journal of the Multinational Association of Supportive Care in Cancer·Petrea CornwellSarah Olson
Feb 9, 2012·European Journal of Cancer Care·D LangbeckerP Yates
Mar 3, 2012·European Journal of Oncology Nursing : the Official Journal of European Oncology Nursing Society·Anne ArberDouglas Guerrero
Oct 30, 2012·Supportive Care in Cancer : Official Journal of the Multinational Association of Supportive Care in Cancer·Alessandra PetruzziAndrea Salmaggi
Feb 27, 2013·Journal of Social Work in End-of-life & Palliative Care·Maria WasnerGian Domenico Borasio
Mar 2, 2013·Oncology Nursing Forum·Jean D PawlPaula R Sherwood

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Citations

Apr 20, 2017·Disability and Rehabilitation·Lee CubisSuzanne Chambers
Jan 18, 2019·Journal of Clinical Nursing·Inge FaarupBirte Østergaard
Jul 3, 2019·The Cochrane Database of Systematic Reviews·Florien W BoelePaula Sherwood
Feb 14, 2020·Neurological Sciences : Official Journal of the Italian Neurological Society and of the Italian Society of Clinical Neurophysiology·Milena PertzPatrizia Thoma
Oct 12, 2021·Health & Social Care in the Community·Milena HeinschFrances Kay-Lambkin
Dec 31, 2021·Palliative Medicine·Christina Yeni KustantiKuei-Ru Chou

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