Support practices by an interdisciplinary team in a palliative-care unit for relatives of patients in agonal phase.

BMC Palliative Care
M MélinB Burucoa

Abstract

In the absence of extant recommendations, the aim of this study was to formalise support practices used by an interdisciplinary team in a palliative-care unit (PCU) for the relatives of patients in the agonal phase preceding death. The secondary objective was to understand the expectations of relatives during this phase in terms of the support provided by professionals and volunteers. Thirty-two people took part in this study; all were interviewed through focus groups (FGs). Each FG comprised one category of individuals working in the PCU: nurses, care- assistants, doctors, psychologists, other professionals, palliative-care volunteers, and relatives. Groups were surveyed using an interview guide, and the interviews were recorded and transcribed to enable identification and characterization of all practices. Care practices were classified into four categories: current consensual practices (i.e. performed by all team members), occasional consensual practices, non-consensual practices (performed by one or a few participants), and practices to be developed. In total, 215 practices were mentioned by professionals and palliative-care volunteers: 150 current consensual practices, 48 occasional consensual practices, 1 non-consensual p...Continue Reading

References

Jul 22, 1995·BMJ : British Medical Journal·N Britten
Nov 14, 2000·JAMA : the Journal of the American Medical Association·E J EmanuelL L Emanuel
Jun 10, 2008·Journal of Pain and Symptom Management·Randy S HebertRobert M Arnold
Dec 19, 2009·Qualitative Health Research·Joy GoldsmithSandra Sanchez-Reilly
Sep 6, 2011·Supportive Care in Cancer : Official Journal of the Multinational Association of Supportive Care in Cancer·Mai-Britt GuldinAnders Bonde Jensen
Nov 13, 2012·Nursing Outlook·Deborah B McGuireJumin Park
Sep 28, 2013·Amyotrophic Lateral Sclerosis & Frontotemporal Degeneration·Ralf StutzkiRalf J Jox
Apr 16, 2014·Journal of Pain and Symptom Management·Sebastian BrueraDavid Hui
Nov 26, 2015·Journal of Pain and Symptom Management·Kirsten WentlandtCamilla Zimmermann
Dec 18, 2015·BMJ : British Medical Journal·Joshua RueggerUNKNOWN guideline committee
Dec 19, 2015·Cancer Control : Journal of the Moffitt Cancer Center·David Hui
Sep 5, 2018·Journal of Palliative Medicine·Betty R FerrellDiane E Meier
Oct 30, 2019·Nursing Open·Anett Skorpen TarbergBodil J Landstad

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