Supporting Patient-Provider Collaboration to Identify Individual Triggers using Food and Symptom Journals

CSCW : Proceedings of the Conference on Computer-Supported Cooperative Work
Jessica SchroederJasmine Zia

Abstract

Patient-generated data can allow patients and providers to collaboratively develop accurate diagnoses and actionable treatment plans. Unfortunately, patients and providers often lack effective support to make use of such data. We examine patient-provider collaboration to interpret patient-generated data. We focus on irritable bowel syndrome (IBS), a chronic illness in which particular foods can exacerbate symptoms. IBS management often requires patient-provider collaboration using a patient's food and symptom journal to identify the patient's triggers. We contribute interactive visualizations to support exploration of such journals, as well as an examination of patient-provider collaboration in interpreting the journals. Drawing upon individual and collaborative interviews with patients and providers, we find that collaborative review helps improve data comprehension and build mutual trust. We also find a desire to use tools like our interactive visualizations within and beyond clinic appointments. We discuss these findings and present guidance for the design of future tools.

Citations

Jul 14, 2020·Proceedings of the ACM on Human-computer Interaction·Jina SuhGary Hsieh
Dec 7, 2017·Frontiers in Public Health·Peter WestNigel Shadbolt
May 14, 2019·Proceedings of the ACM on Interactive, Mobile, Wearable and Ubiquitous Technologies·Chia-Fang ChungSean A Munson
Mar 9, 2019·Journal of Healthcare Informatics Research·Jessica SchroederMatthew Kay
Jul 14, 2020·Proceedings of the ACM on Interactive, Mobile, Wearable and Ubiquitous Technologies·Jessica SchroederSean A Munson
Nov 9, 2017·Journal of Clinical Medicine·Jasmine ZiaMargaret M Heitkemper
Dec 12, 2018·Journal of the American Medical Informatics Association : JAMIA·Maichou LorSuzanne Bakken
Feb 26, 2021·Journal of Medical Internet Research·Mustafa OzkaynakPatrick Klem
Feb 20, 2021·Frontiers in Digital Health·Sean A MunsonJames Fogarty
May 14, 2021·Proceedings of the ACM on Human-computer Interaction·Adrienne PichonNoémie Elhadad
May 8, 2021··Yunan Chen, Mayara Costa Figueiredo
Apr 20, 2018··Noémie ElhadadMollie McKillop
Jul 5, 2020··Simon NienhuijsJos-Marien Jansen
Jun 5, 2019··Jakob E. BardramGiovanna N. Vilaza
Apr 20, 2018··Jesper KjeldskovMikael B. Skov
Apr 29, 2019··Eric B. HeklerMichael Kellen
Nov 1, 2018··Ravi Karkar, Ravi Karkar
Jun 11, 2018··Jessica SchroederDaniel A. Epstein

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