Surveillance Testing and Preventive Care After Fontan Operation: A Multi-Institutional Survey

Pediatric Cardiology
Michael V Di MariaAdel K Younoszai

Abstract

More children with single ventricle heart disease are surviving after Fontan surgery. This circulation has pervasive effects on multiple organ systems and has unique modes of failure. Many centers have created multidisciplinary programs to care for these patients. Our aim was to survey such programs to better understand current approaches to care. We hypothesized that significant variability in surveillance testing strategy would be present. Eleven academic institutions with established Fontan care programs performing a combined estimated 300 Fontan surgeries per year, with a total population of 1500-2000 Fontan patients, were surveyed using a REDCap survey regarding surveillance testing and basic practice philosophies. Fontan care programs were structured both as consultative services (64%) and as the primary clinical team (9%). Electrocardiograms (73%) and echocardiograms (64%) were most commonly obtained annually. Serum studies, including complete blood count (73%), complete metabolic panel (73%), and Brain-type natriuretic peptide (54%), were most commonly obtained annually. Hepatic testing consisted of liver ultrasound in most centers, obtained biennially (45%) or > every 2 years (45%). Liver biopsy was not routinely recom...Continue Reading

References

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Citations

Jul 2, 2019·Circulation·Jack RychikUNKNOWN American Heart Association Council on Cardiovascular Disease in the Young and Council on Cardiovascular and Stroke Nursing
Aug 19, 2020·Pediatric Radiology·Jonathan R DillmanAdam M Lubert
Apr 29, 2021·AJR. American Journal of Roentgenology·Govind B ChavhanGeetika Khanna
May 9, 2021·Pediatric Cardiology·Taylor P SaleyAllison C Hill

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