Survey on information needs of cancer patients and their relatives in Germany

Deutsche medizinische Wochenschrift
Ivonne RudolphJutta Hübner

Abstract

Cancer patients generally have a great need for disease-related information. They prefer to be informed personally by the attending doctor. Yet, they also use other sources, mostly from medical laypersons or public media. The goal of our survey was to obtain insight into information patients get and their requirements regarding information. Using a standardized questionnaire, we conducted a survey on 226 patients and 32 relatives, who attended meetings providing information for cancer patients. Patients were generally content or highly content with the information they got. The direct consultation with the doctor is the most important source of information especially for older patients. Information by other patients and self-help groups rank second, followed by internet and online chats, which both are of minor importance for patients older than 60 years. From the patients' point of view, sources of information should be individualized and comprehensive, provided by experts and allowing for questions. Patients prefer one constant person for communication. Remarkably, empathic communication was not rated as important. Age and gender are not associated with these preferences for these characteristics of sources of information. Pa...Continue Reading

Citations

Jan 15, 2016·European Journal of Cancer Care·D GodlewskiP Wojtyś
Nov 29, 2016·Cancer Investigation·Tobias FuchsJutta Huebner
Aug 19, 2017·Journal of Cancer Education : the Official Journal of the American Association for Cancer Education·Cathleen BöhmeJutta Hübner
Dec 22, 2015·Journal of Cancer Research and Clinical Oncology·Dana RuettersJutta Huebner
Nov 22, 2019·Health Communication·Katarzyna Leoniuk, Krzysztof Sobczak
Dec 14, 2018·Supportive Care in Cancer : Official Journal of the Multinational Association of Supportive Care in Cancer·M BartholomäusJutta Huebner
Nov 11, 2015·Journal of Cancer Education : the Official Journal of the American Association for Cancer Education·Marie-Desiree EbelJutta Huebner
Aug 4, 2016·International Journal of Clinical Oncology·J MaschkeJ Huebner
Jan 27, 2019·Journal of Cancer Education : the Official Journal of the American Association for Cancer Education·Hannah EisfeldJutta Hübner
May 28, 2019·Journal of Cancer Research and Clinical Oncology·Lucas Andreas BraunJutta Huebner
Oct 6, 2021·Nutrition and Cancer·Alexandra SchmidJutta Huebner

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